Re: Rolfing....anyone experience this???

I have often thought about this technique before, and an article was brought to my attention this morning. It really leaves alot of food for thought as an alternative approach to Dystonia... you all might want to check this out.. lets get more feedback on this subject in case any of you out there has tried this,too!
Check out this article.. and I really wonder about it... any comments????

http://newsok. com/article/3270027/

Tags: alternative, dystonia, medicine, rolfing

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Permalink Reply by luvslulu on July 15, 2008 at 1:51pm: P.S. I don't really know how to "Link" that article here, so just copy and paste this into your browser....
http:/newsok.com/article/3270027

Anyone have this done, and if so, how did it go? Very curious about this approach!
Have a great day,everyone!
OXOXO Luvslulu; ▶ Reply to This

Permalink Reply by Karen on July 21, 2008 at 9:44pm: Hi Luvslulu,
Yes, I went 4 times. It is VERY expensive. It was somewhat relaxing, but like anything else that relaxes you with this disorder, the twisting and pain come right back. So, this is one more thing I have crossed off my list of treatments I have tried. :(
Karen; ▶ Reply to This

Permalink Reply by luvslulu on July 15, 2008 at 2:15pm: I see no chanin link.. nor when I copy and paste the above URL, I can't get to the page ,so Im gonna try something different... like post it as if I was posting it on MySpace.. meaning.. the HTML lingo.Here goes.. lets see if this will "link".
http://newsok. com/article/3270027/; ▶ Reply to This

Permalink Reply by luvslulu on July 15, 2008 at 2:19pm: try this...
http://www.newsok.com/article/3270027/; ▶ Reply to This

Permalink Reply by luvslulu on July 15, 2008 at 2:22pm: BINGO
Ok..thanks, Paula! I got it to work by finding it on my Google alerts from this morning. same link... but it did show up this time.. such fun on the internet we have! Hope you all can getto this link above!!; ▶ Reply to This

Permalink Reply by sisdailey on July 15, 2008 at 8:52pm: Hello Luvslulu:
I have heard about rolfing. I have a friend who did rolfing who had DRD. She said it really helped her. Now she has her life back on track and is attending school. She said it was great therapy and helped her to relax. As for me I've never tried it and don't know of any place where I live that one could try it. I think it is an interesting subject. One never knows what will work for them.
sisdailey; ▶ Reply to This

Permalink Reply by sisdailey on July 16, 2008 at 12:43pm: Hi Luvslulu:
The link you posted on rolfing to the artical features my frieind Karen Hawkins that I was talking about in the post I made above. She has been my friend for several years and we have emailed back and forth. I am so glad it helped her get her life back. It is a very interesting to read. I would recommend that everyone read it. I had never heard the name rolfing until she told me what she was doing.
sisdailey; ▶ Reply to This

Permalink Reply by Jimmie on July 16, 2008 at 10:22pm: Hi All,
I am 59 years of age and have had cervical dystonia for 8 years, being diagnosed for the past 6 years. Before diagnosis I was mainly trying chiropractors and homeopaths for relief and answers and a chiropractor recomended rolfing, which I did. The normal Rolfing treatment lasts 10 weeks at one session per week. In my case I was a great distance from the Rolfer (not to many of them in Wyoming) and he agreed to do two sessions per week on me. The Rolfer I went to took video snapshots of my structure before the first session and then subsequent snapshots every other session so we could compare my structural profile at the end of the 10 session program. In my particular case there was no change in the way I stood and the pulling of my head to the left, the curve in my spine and my left hip being higher was not changed. The practitioner was very puzzled why there was no change in the way I stood and my head pulled down and to the left just as it did in the first snapshot. After being diagnosed a couple years later I visited him again and explained what my problem is in the hopes of educating him for the next ST patient who consults him. The experience was moderately painful but would be very painful for some. As with most ST patients I have a high tolerance for pain. To be fair to the Rolfer, he did say the results would not be maximum because the body needs at least a week between sessions to adjust to the work being done and in some cases two weeks between sessions. I may have had better results if I had not rushed it.

One of my greatest pleasures is when I awake in the morning completely pain free and it DID happen this morning. :-+)

Keep the faith, things do get better!!!!!

God Bless

Jimmie Bales; ▶ Reply to This

Permalink Reply by KathyK on July 20, 2008 at 11:56am: I tried Rolfing back in 2000-2001. Before and after photos were taken. There did not seem to be any noticeable change in the photographs or the Cervical Dystonia. I attended for more than the usual 10 sessions. Though I have gone into remission I really can't correlate the remission to the Rolfing. I'm probably just one of the lucky 10%.; ▶ Reply to This

Permalink Reply by Libertysnanners on July 27, 2008 at 2:23pm: Hey this Karen, I am the one in the article. My first visit the rolfer he knew from the beginning it was going to long road and wasn't sure he would be able to help me. It was six months before he was in familiar ground. My neck leaned the right seemed to connected to my shoulder, but right shoulder was pulled forward, my body was contorted to the left. my left hip was pulled forward and higher, and to be honest I didn't think it would of went anywhere. Rolfing is very expensive if it wasn't for my dad paying for the session I wouldn't be able to afford it. After two and half years I am finally straightened out but I still struggle daily with pain the muscle spasms, the body wanting to contort back. I learned over time when going to rolfer what muscle caused the nerve pain, the contortion, and how to massage muscle out or even get a friend to massage muscle out. I never took before pictures I was afraid one I hated what I looked like. I still struggle with pain and numbness in my hands and feet. It is tolerable for the most part. I will add this though since the article came out I have started going to chiropractor not rolfing. The newspaper article was such a success here that rolfer had tons of calls and didn't get back to me so a friend who works at chiropractor office worked me I was dizzy, in pain, and the treatment he gave me I went a week feeling great. I am sorry and I may be wrong but I feel my rolfer forgot about me after the article came out.

I chose alternative treatment mainly I had tried everything else already. I had tried the muscle relaxants, pain pills, botox, numerous other medication, nothing seemed to give me any relief. I started out with acupuncture and it brought some relief that is how I was referred to rolfing.

I was 27 when I was first diagnosed with tardive dyskinesia and over the year it continued to progressed until now the diagnosis is generalized tardive dyskinesia/dystonia. I am 41 now and just now returning back to work.

The main muscle that seemed to cause the problem was psoas muscle which is what caused my right shoulder forward and down and my left hip to be pulled forward and up. Once that muscle loosened up and released my right shoulder and left hip began going back in place. Through rolfing I learned a lot of why my body was contorted and hurt so much what muscle groups were causing the pain and the contortion. There were times I left rolfing session in more pain then when i went in. Most was trial and error what worked with me. I am glad i agreed to the article but at sametime I am not. The article brought out awareness but at same time I feel like he forgot the patient. Rolfing is ten session usually but I went once week for two and half years.

All of us different and effects us differently and what works for me may not work for others.

Have a great Sunday everyone.

Karen; ▶ Reply to This

Permalink Reply by sisdailey on July 27, 2008 at 2:35pm: Hello Karen:

I am so glad to see you have joined wego health. I am still finding my way around but it gets very instering here and you will find a lot of information about dystonia. Everyone is is great at sharing their experiences with dystonia.

Hugs, Sisdailey; ▶ Reply to This

Permalink Reply by Libertysnanners on July 27, 2008 at 4:29pm: Hello Sis,

I am glad I found it as well. I have enjoyed readin your emails. I work on computer all day answering calls so sometimes when i get home computer and telephone are the last two things i want to see. I am slowly finding my way around this site. There is a lot of information I can tell I have been out of the loop for many years.

Hugs,
Karen; ▶ Reply to This