ONLINE Video Channel for Dystonia and other disorders.

Hi All-
Upon the suggestion of two members, I have begun this post so that it becomes the main viable thread and posting area for the New Online Video Channel for Dystonia and other disorders. One location to view and comment and post your thoughts on your thoughts about each Video Link.

I urge that everyone scan and post their own Video Links as a start- to begin the process. I will add videos Monday once I get out of the ICU.
One more nite to go...
beka

Tags: central, dystonia, facebook, home, links, location, made, my, ning, space

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Permalink Reply by beka on May 29, 2009 at 4:03am: Sensory disorder theory proof ??

beka; ▶ Reply to This

Permalink Reply by beka on May 29, 2009 at 4:14am: I got this email from Paddy in Ireland- He is a best selling author ( The God Squad ) and recently was on Irish TV.
He wrote to me :

This is the Link for the TV programme- http://www.rte.ie/news/2009/0521/primetime_av.html?2548090,null,230

Paddy has had generalized dystonia for 1/2 a century.

beka

The film TWISTED will be reshown on Independent Lens on PBS. http://blinddogfilms.com. Thanls for the update , Sis.; ▶ Reply to This

Permalink Reply by Jenn on June 8, 2009 at 4:12pm: This video is not about my dystonia... BUT you can see my dystonia in it..
I am right sided generalized... That day I was mostly having problems with my arm.. but you can tell I sort of walk a lil funny too :P

Look carefully on how I hold my right arm and hand while I'm walking and talking.. (I was having forearm spasms... and cannot lift 10pds with my right hand or straighten my arm without pain)

Promogurl gets MAXIMUM exposure :P; ▶ Reply to This

Permalink Reply by 40K in UK on July 6, 2009 at 5:07pm: I found these two links by chance on Trombonists with Embouchure (Focal) Dystonia.

The first is a YouTube link where “In a collection of films Dave Scragg (Diss Norfolk UK) explores the understanding and treatment of Focal Dystonia as an emotional condition, highlighting the work of Joaquin Fabra”.

Dave talks to Joaquin about his personal experiences of developing the condition, discovering the cause and thereby treating himself and others.

Dave also speaks to two Trombonists about their experiences. In this first film Rob Egerton talks about how he developed Focal Dystonia

http://www.youtube.com/watch?v=YKGq9OPN19c&feature=channel_page

The second link is a report by Joaquin Fabra on Embouchure Dystonia

http://www.embouchuredystonia.com/archivos/EmbouchureDystoniaDossie...

It makes interesting reading and is a bit thought provoking on the possible cause of a dystonia condition.

I have no comments - just getting the information out there.

Ian; ▶ Reply to This

Permalink Reply by beka on July 15, 2009 at 12:40pm: Here are some new videos about Dysport -

Link : http://www.mefeedia.com/tags/dysport

Listening to Lady Ga Ga !!

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