ADHD

Comment

Comment by roseviolet on April 24, 2011 at 10:06pm

HynesMom, great post!

A lot of the problem with getting good treatment - and good research - for stuff like ADD is that whether you want to call it neuro or psych, it's seen as a behavior issue and/or a mental health issue and thus subject to a LOT of stigma and discrimination. Like the idea that if we'd just get control of ourselves (or our children) the whole thing - whichever illness it may be - wouldn't be an issue and we wouldn't even need treatment. Boy would I be rich if I even just had a nickel for each time I or a family member got that line of rot.

I share your frustration too with disability advocacy organizations. Many are like hitting brick walls. They seem to do little if anything but ask for money or they have a pet agenda, work with pet projects or favorite people and really don't care about anyone else or any other issues. Like there are advocacy organizations that will tell patients (yeah, I insist on using this word and not consumers) what to say and how to say it - as if we cannot or should not think for ourselves. Um, please don't patronize me. I may be sick but I'm not stupid and I don't think the rest of us are either. We ARE capable of thought and our own decisions - whether or not you (the advocacy organization) like them.

One thing I'm convinced of is that new, better functioning advocacy groups that are more interested in helping those of us with the conditions as WE want help would help a LOT for many neurological/psychiatric (I don't really like separating the two because with the exception of, perhaps, personality disorders psychiatric conditions are all DECIDEDLY BRAIN BASED with proof via things like fMRI and SPECT scans of differences in brain function).

And sorry if this post has been hard to follow, I have a neuro problem that pops up when I have migraines that can cause cognitive problems with expressing myself.

Comment by Amy K on April 24, 2011 at 9:40pm

Great post HynesMom! Thank you for sharing.

Comment by HynesMom on April 24, 2011 at 6:06pm

New blog post demanding more answers on ADHD:

 

http://argonnechronicles.blogspot.com/2011/04/where-are-answers.html

Comment by Twisted Noodle Soup on April 6, 2011 at 2:41pm

I still have ADHD and it causes me lots of problems and I know now that I cant do without my medication due to the short fuse it leads to. I've made some terible decisions as an adult and attribute much of my trouble to this affliction.

Comment by kaagee on February 12, 2011 at 1:56pm

First hand knowledge of Straterra would be most helpful.
Thank you.

Comment by Amy K on February 12, 2011 at 12:47pm

Hi Kaagee,

I hope that some of the members here will have some ideas or resources for you. If you do not get a response from your comment here, you may consider creating a discussion within the group and perhaps more people will chime in? Also, what kind of information are you seeking specifically? Are you looking for more information on Strattera or on ADHD in college age students? I know there are many well-educated ADHD Health Activists here that have a lot to offer, hopefully they can guide you to just the right place for information. Meanwhile, I would suggest, ADDitudemag.com as a great place to start!

Amy

Comment by kaagee on February 12, 2011 at 1:03am

Looking for some guidance, please!

My son, 23 yrs of age had school difficulties when young...we home schooled during high school years.  Schools suggested Ritalin due to attention and focus problems, but there was more to it than that.  He had leadership ability and a great sensitivity...he had opinions.  Testing, etc. The medical community prescribed Prozac and Ritalin during middle school, which we graciously declined.

Now that he is in college, he finds that he is easily distracted.  He has revisited the diagnosis of ADHD and was prescribed Strattera. It is expensive, but Canadian Meds is more affordable.

Would appreciate any information.

Thanks.

Comment by RocknBob on September 12, 2010 at 1:42pm

Hi guys and and glad to join. I was diagnosed with ADHD along with Bi-Polar. I will state that if you child is diagnosed with it medication may help. Be careful what is given to your child and research it. A ADHA needs a structured live. Karate classes also help a lot. I attended a military school and had to get up at a certain time, eat meals scheduled, activities on time, and study hall at a certain time. It did help me but now have problems with organization and maintaining my own scheduled activities.Due to my other disorder can not take Addiral either due to it jacking me up to much. I hope that my information is helpful to you.

Comment by Lisa on June 8, 2010 at 11:17am

Hi everyone!  We're holding another Health Activist Meetup and want to know what you want to discuss.  Let us know what's important to Health Activists and to your community - leave a comment on our blog post!

Comment by Bell on April 8, 2010 at 3:34am

Hello my name is Bell and I can not stand my lose sleep!
I can not sleep well everynight

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