Alzheimer's Disease

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Comment by sanu on October 1, 2009 at 4:47am

I saw a comment by Joseph and so adding some information. In India a good quality service is available for people with Alzheimer's and their family. The alzheimer's society in India is running many care homes, Special memory clinics, day care centres and support groups since the last fifteen years. I am associating with the Alzheimers society. The society had already completed many research studies and is still active.

Comment by Snowbird on September 13, 2009 at 10:04pm

The NYT Slideshow is absolutely terrifying. I don't think I can begin to imagine what it must be like, even though I worked briefly with Alzheimer's patients in the mid-90s.

Comment by Lisa on July 6, 2009 at 1:30pm

I wanted to share with all of you a NYT slideshow, similar to Amanda's, that depicts a artist's slow descent into dementia, as seen by his self-portrait paintings. As you flip through each piece, you can see the the toll this devastating disease has had on the artist's mind, and his work. I encourage everyone to check it out - it's nothing short of incredible.

Comment by amanda on March 24, 2009 at 12:55pm

I just wanted to share a beautiful website with everyone in the Alzheimer's community. This site is a photo journal by Phillip Toledano called "Days With My Father". The photography is stunning (so heart-warming and emotional!) and the journal is such a cool way to explore the journey with Alzheimer's between a father and a son. You can watch as their relationship changes while they endure the struggles of the disease and they still find the beauty in life. (It's a flash site so just click around to explore.)

Comment by Joseph on February 11, 2009 at 12:45am

I am a Indian and I have become a member just for knowing the above details. If it is wrong. I am sorry for it. Please delete my membership and profile.

In India Alzhimers patients have no special clinics. The society is not at all aware of this disease. As I have some experience from nursing my mother I know thoroughly the difficulties of such patients. So I wish to start a new project to help Alzhimers patients. I wish to get assistance and more infrmation from your organisation to start my project.
I have become a member to this group for receiving more knowledge about this disease. and further advice.
Thanking you
Joseph

Comment by Lisa on January 14, 2009 at 2:08pm

Hi Ellie, great to have you here sharing your experiences with our Alzheimer's community. I thought the article 10 Alzheimer's Support Tips which is featured in our Alzheimer's Support page would be very helpful for you, as well as any other community members, who are supporting a loved one with Alzheimer's. I hope this helps. Keep us updated on how your step mother is doing. It's great to hear from you. Thanks, Lisa

Comment by Ellie on November 8, 2008 at 10:16am

Hi I'm Elle and my step mother who had Alzheimer's lives me with me. At present her disease would be characterized as moderate. Lately, in addition to the profound short term memory loss, she has become uncharacteristically emotional and, I fear, somewhat paranoid. I can deal so far, but I do worry about the future.

Comment by Jody Simpson on September 16, 2008 at 2:59pm

Hi Jeanne.
Thanks for joining Wego Health. I hope your dad is adjusting well to life in Florida. It's tough to say what symptoms your dad might face in the future. However, you can learn more about Alzheimer's disease, including a 24 hour support line at the Alzheimer's Association: 24-hour helpline 1.800.272.3900 or
info@alz.org. They also have an amazing section on Living with Alzheimer's. I'm sure you'll find the answers to many of your questions there.
You can also check out our Alzheimer's support page here.
Thanks again for joining, and be sure to keep us posted on how your dad is doing!
-Jody

Comment by jeanne on September 4, 2008 at 12:58pm

...I just started over this past year taking care of my dad....I moved him from Iowa to live in Florida where he is in an assisted living facility about 5 miles from me....at this point he still knows me and can do some things for himself...good days....bad days....but has a wonderful sense of humor to go with the daily "forgetting" (as he calls it).....I know that the personality can change completely, does anyone know if this is something that probably WILL happen....or that it can happen...he can laugh at himself now (like the other day when he had two shirts on...) but who knows about tomorrow....day at a time....thankyou to all who helped put this page and site together....it will be very helpful to eveyone....I feel this is probably one of the cruelest diseases there are...

Comment by Jack Barrette on July 24, 2008 at 8:50am

Shirlg, thanks so much for adding the voice of real-life experience to this conversation; there's so much that we all guess about, especially in the vein of what-dad-understands-or-makes-him-happy. I remember clinging to moments of lucidity in my Dad's battle... like it was yesterday, I recall a wandering conversation during which he stopped - and almost as though he knew he was interrupting his disease's progress - he whispered "I know why I have to be in this place, and it's what you had to do."

THANKS for giving us the gift of your amazing insights...

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