Alzheimer's Disease

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Comment by Anna Karenina on July 13, 2011 at 9:43am

<br /><small><a href="http://depressaoepoesia.ning.com">Visit <em>Escrever é Preciso...  {Depressão e poesia}</em></a></small><br />

Comment by Ellen S on July 11, 2011 at 1:53pm

Wanted to take a moment to let everyone know that there is a blogtalk radio show with Marla Martindale July 12 at 2pm EST. Her guest is Karl Kazmierczak, Esq. a Board Certified Social Security Disability Specialist by the National Board of Social Security Disability Advocacy. Karl has been practicing law in New Jersey since 1997.  Find the link to this event here:  http://bit.ly/oyKITH

Comment by Barry Pankhurst on May 9, 2011 at 8:45pm

“Voice of Dementia”

 

‘Oh’ where is the language once eloquent to my life, 

    That flowed from my lips like a rapturous stream,

Ne’er faltering, nor stammering, in linguistic accord, 

    A cornucopia of words the stepping stones of speech,

Retained within the archives of the memory maze…

 

Now vocabulary doth elude it’s pathway from mind,

    Communication fraught in bewilderment’s voiceless lexicon,

Of a Mother Earth tongue once having timbre continuity,

    That echoed out within a resonance… o’er the lea,

Now void and silent seeking a rekindling of collocation…

 

‘Tis a quest of all quests’s to evoke mine words,

    So that again once more my voice can be heard…

Yet, ‘tis a quest I know that ne’er shalt be won,

    But whence the times comes and life I doth depart,

Thence the eloquence of language shalt return to my heart…

 

Barry ©   

Comment by Dani on May 5, 2011 at 10:43am

Hello everyone,

I'm the Program Coordinator for our local Family Caregiver Support Program - we take care of the people who take care of the frail and cognitively disabled elders.  I just wanted to take a moment to say hello and perhaps gain some insight that I can then turn into some sort of teachable moment for the caregivers who attend our monthly trainings and support meetings. 

I want to thank you all for sharing such personal and insightful stories.

Dani Kebschull

Soldotna, Alaska

 

Comment by Barry Pankhurst on February 25, 2011 at 4:20pm

Hi everyone please check out my own Blog page

 

http://community.wegohealth.com/profile/BarryPankhurst

 

Barry 

Comment by Sandyalz on February 17, 2011 at 10:31am

Hello Jeff,

I can understand how you feel, just being aware of any symptoms at all. I was noticing a few things about myself, and my Mom did have Alzheimer's.

When I asked a few friends on Alzheimer's message boards, they all said--if you feel the need to ask, you should see a doctor.

Most MD's (general practitioners) have some mini tests and things they can check to see if you need more thorough medical care such as neurologists and such.

Won't hurt to check it out. Even though there isn't a cure, the sooner you get a diagnosis, the sooner you can get on meds that may slow it down.

 

Glad you could join us.

Sandy

Alzheimer's Support

Comment by azk86314 on February 13, 2011 at 7:27pm

Hello e1! I'm Kay i live in AZ My mom moved here in Sept from Upstate,NY.After she got her she when and saw her new dr she gave my mom a memory test.And told me my 88 yr old mom has Alzheimers.She put her on Aricept.Plus on top of this she has diabetics&has a pacemaker.Has alot of health probs.And 2 boot her youngest sister has it 2.I'm the youngest in our family rest of siblings live bk East coast.2 are out of site out of mind the saying goes.Me they in denial.So i join this group 2 get more info besides what i get on alz.org&going 2 a suppost group in my town.

Comment by Sandyalz on February 12, 2011 at 11:01am

Just a quick note. I don't know how many of you are aware of Rick Phelps?

He's an EOAD patient and creates a video everyday so that others might follow his progress into Alzheimer's. Rick's Video

He has created a Closed Group on Facebook. "Memory People"

It's for people who have Dementia or Alzheimer's. Great commradery for them as they understand what the others are going through. If you have a loved one or family member with memory-loss, they may want to join that group. It's rare to find good forums for the people who have the disease. 

All you need do to join "Memory People" forum on Facebook is send a Friend Request to "Rick Phelps." They do accept caregivers also.

Comment by Sandyalz on February 12, 2011 at 10:53am

Hello,

I just recently joined the group.

I took care of my mom with Alzheimer's until she passed away 3 years ago. I learned so much from forums and  websites and books while taking care of my mom, that I started my own blog when she passed away. 

Alzheimer's Support

I was amazed how little was understood about Alzheimer's Disease by the average person. I hope to raise awareness so that more existing knowledge about Alzheimer's and Dementia becomes "common knowledge" to everyone.

Being part of the baby-boomer generation, myself. It's a little scary to realize the great influx of Alzheimer's and Dementia that we have to look forward to.

I hope to learn lots of new things from you and hope I can blog a few interesting things, myself.

Sandy

 

Comment by Marie on January 25, 2011 at 9:23am

Hi everyone,

 

Just found out about a very interesting Twitter Chat happening tonight - two Early Onset Alzheimer's patients will be answering questions from physicians, nurses and patients as part of @MD_Chat.  

 

It looks like an incredible opportunity to connect with others in the Alzheimer's community - I hope you'll check out the details and jump into the conversation at 9PM Eastern Time tonight!  

 

For all the details, check out this blog post from MD Chat, follow them on Twitter at @MDChat, or check out the hashtag tonight: #MDchat

 

See you there!

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