Autoimune Diseases

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Comment by A. James Hillelson (Jim) on November 6, 2009 at 9:30pm

Thanks for the welcome, Barbara. I'm pleased to be here. I look forward to 'meeting' others, learning and sharing in whatever way I am led to do.

Rest Well and have a wonder-filled weekend!

Comment by Barbara Engle on October 30, 2009 at 9:57am

Welcome A James.. Glad you are here with us

Comment by A. James Hillelson (Jim) on October 30, 2009 at 8:40am

Hello All! I am new to Wego Health, although I am involved actively in two other health related ning groups. I have Systemic Lupus, moderate to severe osteoarthritis that is more and more looking like the Rheumatoid type, although the blood tests do not support this to date. Not uncommon, I understand. I also have neuropathy in my arms, legs and feet that is pretty well managed with Neurotin. I have severe back problems that began with scoleosis (sp?) that was diagnosed in my youth. The arthritis has greatly affected my spine as well as Degenerative Joint Disease, PTSD and associated generalized depression that escalates from time to time. Then, I was recently diagnosed with sleep apnea.

The lupus and arthritis is not well managed at this point. We keep trying! My Rheumatologist wants to start me on Remicade. I am interested in knowing if anyone has experience with Remicade to share their results.

I look forward to getting know each one of you in mutual support and in 'getting the word out' to improve the awareness of Chronic Illnesses/Chronic Pain.

Be Blessed!

Comment by Jenn on October 23, 2009 at 7:45pm

Hi everyone! I have tested positive for autoimmune disease but all we know so far is that I do not have lupus or HIV. <6 months and thats as far as we've gotten'> Other than chronic fatigue and goiter I am not showing symptoms. I am still in the process of receiving diagnosis.

I also have generalized dystonia also and am being treated for those symptoms.

Comment by 68beetle on August 20, 2009 at 10:48pm

Hello All! New here.....I have Lupus. (SLE)

Comment by chyvonneb on August 12, 2009 at 2:46pm

The more the merrier!

Comment by Barbara Engle on August 10, 2009 at 6:20pm

I have been having and interesting disscusion of at inspire. I invited the ladies to come join us here. Hope you don't mind!

Big Hug Barbara

Comment by Sheridragonfly on July 31, 2009 at 7:41pm

I forgot to mention I have segmental dystonia too...
and had endometrosis...endometrosis is linked to autoimmune
disease..learned that years after I had been diagnosed with endometrosis.
I also had encephalitis as a child..

Comment by Sheridragonfly on July 31, 2009 at 7:40pm

I have fibromyalgia and CFs along with multiple chemical sensitivity illness or
enviromental illness.
Twenty years ago I woudl have thought that MCS or E.I. was sci -fi
and not real..Well it is and it is horrible to try to live each day with it
in a toxic world..Sheri

Comment by chyvonneb on July 26, 2009 at 7:02pm

hello all,

Anyone with MS, please feel free to share your story at

http://shellshearts.blogspot.com/

This blog was recently started by my friend who has MS.

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