Chronic pain and traveling

I suffer from so many multiple things physically, between injuries and then fibromyalgia, RA, and neuropathy.........Many spinal injuries, disc problems, nerve damage, and on top of it all exhaustion, fatigue, lethargy. I went on a cruise with my family the beginning of June and it whiped me out for a month. I came home exhausted an din great agony! I really didn't do very much at all either, just the fact that my regular daily homebody life was disrupted......Well, my Son ims 15 now, and I we have been talking about going to NYC when he gets old enough. My aunt an duncle live in Ct. So we are flying up there soon. My Aunt and Uncle are in their 60s and are extremely active people, always have been. They understand my issues, and of course my son does because he sees his mom in bed majority of the days! I have NEVER taken a vacation with my Son, not just him and I. We are traveling alone, staying at my families, and then taking a train into the city for a day. He understands that I am very limited, but I really want to have a good time with him. I am getting worse and worse, and also my other health issues are too(not the physical pain) I am also suffering liver disease and am very close to liver failure, which also causes exhaustion. So, I truly have that * I want to have some fun with my Son before it is too late, an dI can't anymore* I was just wondering if anyone had any suggestions on ways that they have found traveling easier. I know liek taking breaks, sitting, resting, and getting off of my feet. I just don't want to ruin his day in the city that we have been planning since he was a little boy. I don't work, I can't. So, I really do not get to do anything with my own child alone. It is always with family members (financially, they always pay for us) Just want to spend some quality time alone with my Son. This is one of the single most depressing things in my life, that I am not a *normal* Mom! I know that when I was strong & healthy, just regular traveling can be stressful & exhausting anyways. I already made plans for a hotel in Orlando, near the airport, so we won't have to wake up ay 4am, we can wake up at 7am instead, and be at airport at 8-830. We have to switch flights, which I know can become a hassle sometimes. I booked the lowest hours of travel on all the flights for the days we are traveling. Some were up to 8 hrs long!!! For a 3 hr flight lol CRAZY!! Then I had my Son pick the 3 most important places he wants to visit in NYC, so I have an idea of where we will be(I used to live there) trains an cabs are in my planner, not walking. Or walking as little as possible! There is no such thing as no walking in Manhattan! lol So, in my fear and panic already of ruining our vacation that has not even started yet, I was wondering of anyone has any advice? My family sees my pain, sees how bad I get, but they still get very frustrated. Especially a young healthy teen aged boy! I really don't believe that anyone can understand completely unless they lived it. I am very happy that I have a very healthy son, he certainly got his Dad's genetics with healthy bones and muscular body!! One good thing from his dad lol Anyhow, I am thinking walk and rest, drink a lot of water, sit and rest, eat, take liek 15 min breaks??? I don't know. We were going to do a Broadway play too, but I hrtink that would over do big time. I am not as worried about making it thru the day as much as I am worried about how bad I will feel after, and how long I will be DOWN again? What we won't do for our children? But I am doing it for me too. I am terminal, and no one knows when exactly my liver may just go, and the past year I have gotten extremely worse, so I want to enjoy time with my son before I can't anymore.........And no I am not a TP candidate! I can not get a new liver when mine goes, and have already had legal papers drawn up for straight to hospice.......It is a sad fact, but I grew up working in medicine, and around it. I just am being realistic, unless before it all happens to me, I am praying for the cells that can regenerate a new liver for me, with my own cells! That would be awesome!! They are already doing it, but not in humans yet! COOL Ha? They take a mold of a liver, my blood & cells....squirt it all over the liver mold(pig liver) and incubate it, and my own cells will grow a healthy brand new liver = )))
Ok so back to the travel, any advice would be appreciated. Thanks
Jenn