WEGO Health

New to WEGO Health's Chronic Pain group? This is the place to get started!

Please, take a moment and introduce yourself. Tell us a little bit about what interests you in the Chronic Pain community and why you've come to join us. Feel free to include any links to your websites, blogs or communities in which you are active. This is your place!

We look forward to getting to know you in the boards. Jump right on in whenever and wherever you can. We're glad you're here. :)

Again - Welcome!

Tags: discussion, introduction, new, newbie, welcome

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about cervical Dystonia, I went to my Neurologist today and caried in my film with me in which he requested my mri of my neck, mri of my corataid arteries , mri of my brain. from back in2008..Well once again everything look fine from all the tests that they have performed and also he's done EEG and nerve test on my right arm. I'm once agian frustated with no answers.He had told my husband and I that maybe I should consider to see a phyciatrist that maybe they could find out something that they haven't been able to do so. So, yes I'm grateful,upset, a bit confussed,and very annoyed also in ways I judt don't understand . He also told me to continue to see my other Dr. that does injections of botox in my neck,forhead and tempels,it does work for me. I 'm stumped on the fact that why do I lose my balance at times and also studder,and the involuntaring tremors I have only on my right side. It's very upsetting....

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Hi Joni, I think part of your message didn't make it up on the board. Do you want to try to add the missing info?? It sounds really involved and I'd hate to miss anything...

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I am not sure if I ever introduced myself to the group of Chronic Pain. I hang on several boards but now I need the support of this board to be sure! My name is Eileen or Lene which I have used since being labled in school. I have Cervical Dystonia/ Spasmodic Torticollis/Spinal tendinitis/Spinal Spondylosis. I am in pain to say the least. I do go to a pain doctor and a neurologist for my dystonia.. I need to read in your forum for support of my pain. I cry more now again then I use to. I feel I am losing my grip. I was a strong woman and taught my children to be the same. I am failing myself in how I am allowing pain to bring me to my knees. I don't know what to do...hum.
So I am grateful for places like Wego to help me try and get a grip back and fight!!!

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Lene, I'm happy, and sad to see you in this group too. I know you know what I am talking about my friend.

This is the place for you Lene. Especially if you are on your knees. You are a wonderful Health Activist, and I know you of all people understand that the best place to be to reach out and help someone else up is when you're on your knees. God bless sweetie, and be sure to PM me if you ever need anything. I wish I could do more for everyone here...

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sometimes I'm at my witts end....I haven't made an appt to my primary to suggest a phyciatrist yet....I'm still upset from my neurologist suggeting this .....I've been pulling my hair out about this and I've been very irretable it's not far to my family.what do I do from here,how do I learn to accept this....it's been about 2 years I've been ouit of work...and I'm so used to being a provider also...I'm not used to being this unactive....so then there's days to were I'm none stop around the house trying to do everything at once besides the fact of trying / doing thing I shouldn't be doing I just want to give my husband a break and help him pay bills...I've asked my docotrs before about temporay disabilty and they just don't understand how I feel inside and out...It's like are they even listeneing? I'm so sorry to be venting like this and I thank you all for putting up with it ....any suggestions out there?

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Hi Joni,

Thanks for filling in the missing info. Welcome to the Chronic Pain group. I'm so glad you found the intro thread and told us a little about yourself.

Why don't you start a discussion in the group and tell as much about your symptoms, tests and treatments as you can. Such as - do you ever have headache or Migraine? Have you ever had a lumbar puncture to find the pressure of your CSF? etc. Maybe somebody can come up with something that might help.

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