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Dystonia Neuro Movement Disorder Discussions (424)

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Elaine

Can anyone HELP me. My Catch 22 - Paroxysmal dystonia

HI I've written before that I strongly believe that I have Paroxysmal dystonia, but that the Neuro I had, won't even consider it. I am fo...

Started by Elaine

7 3 hours ago
Reply by beka
RevWagner

How do you deal with the emotional struggle that comes with Dystonia?

I am curious as to how you deal with the emotional struggles of Dystonia. Do you feel that you have a strong enough support group to help...

Started by RevWagner

16 3 hours ago
Reply by beka
suej

new drug......

Flexeril anyone? Dr prescribed me this today . Any comments or experiences w/ this?

Started by suej

10 3 hours ago
Reply by beka
onmom

Connection between conditions

My question is regarding the connection between certain conditions. In particular CD and ear issues. I had an extensive cholesteatoma rem...

Started by onmom

2 22 hours ago
Reply by onmom
lisa w

pain management and dystonia

While researching dystonia I never read anything about pain management until I included it in the search. I have had great results at tim...

Started by lisa w

0 1 day ago
karen

morphine pill

below is a post from another dystonia board.. The past year dystonia has really taken a toll on me and my family. The seizure meds, anti...

Started by karen

6 1 day ago
Reply by lisa w
beka

What is it that Persons with Dystonia truly WANT ? Is a Cure being held back ???

Lately I have wrestled with this question as I get more and more emails. More often than not, being unsure what the question that is bein...

Started by beka

75 1 day ago
Reply by lisa w
lisa w

er drs

One of the most frightening things of er docs most know less about dystonia than I do, and what works for me. After 19 years I have learn...

Started by lisa w

0 1 day ago
Rebekah

New Issue of Dystonia Living Magazine

Just posting to let you know the New issue of Dystonia Living Magazine is published online. Click here to read. The magazine is by peopl...

Started by Rebekah

2 1 day ago
Reply by sisdailey
Thorns

Muscle Spasms that feel like a heart attack

I'm asking everyone if they have experienced this type of muscle spasm, it happened the first time when I was away on vacation in Punta C...

Started by Thorns

23 Nov 13
Reply by Pete J.

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