WEGO Health

Ellen S

Question of the Week for everyone: Does the weather make a difference in your Dystonia?

Perhaps this would be appropriate in the Poll section, but I am curious to know more than a yes/no answer.

Does the weather or the different seasons play a part in your Dystonia experience? If so, do you know the connection?

Dystonia is a very personal disorder. Each of our experiences is different, and different types respond differently.

Please share with us if you have just a moment, and include the type of dystonia in which you have been diagnosed.

Thanks!

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Tags: dystonia, group, poll, question, season, weather

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It used to be the cold, rain and humidity that would make it worse, but we have been experiencing absolutely beautiful weather, and I 'm not feeling all too good. Yesterday was gorgeous and I was a mess. Today is gorgeous and I feel better than yesterday...go figure!
Karen

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Weather that is in the high 70's with the sun out bright seems to be my best time. Soon though the weather here in Chicago-land will change and when that cool wind begins to blow I slowly but surely retreat more often to the couch or bed. In the dead of winter I am hardly able to move and pray for spring. Spring was great for me this year. Last week we had a cold, bleak day with rain etc and I slept til 3:30 pm. I do usually sleep late ever since dystonia came. I seem to have alot of fatigue. Its the opposite of what I use to do. I would get up at 5:00 am for yrs to go to work at the bank. I would spring into action!! The dystonia has cause other problems in my back-spine area too. I am getting all that worked on trying to live one more day without pain. Is there such a thing? Lene

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The less humidity for me , the better.. but now that the cold weather is coming have to worry about freezing neck wires - DBS... not too pleasant...

beka

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Ditto on the humidity.
Southern California, land of a nearly ideal climate most of the time (comparatively speaking at least), was unusually hot and humid for several weeks this August. Yuk, I was miserable- and I kept asking myself, "is it the humidity". My imaginative, if not poorly informed theory, being the cells are more swollen, and there is more pressure in the tissues.
Does wearing a turtleneck, and scarf (or several) all the time help with keeping things warm enough do wires don't freeze?

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