I AM ANGRY ....Pyschogenic lazy bleeping doctoring...

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Permalink Reply by Elaine on October 20, 2009 at 11:08am

Cheryl,

I didn't mean that Fibro had to do with movement disorders.
Just keeping updated on my year of getting dxs.
And where it's lead me.

Elaine

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Permalink Reply by chyvonneb on October 24, 2009 at 10:37am

Please try to find a good neurologist who specializes in Movement Disorders!

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Permalink Reply by chyvonneb on October 24, 2009 at 10:36am

Hi, Deb

I would like information on this. I am not nearby. But, I always like to be informed about possible treatment options.

Thanks,
ChyvonneB

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Permalink Reply by Cheryl Sunshine Benson on October 15, 2009 at 2:54pm

they did this with me although on purpupost, for seizures, and brain and body damage to cover from drugs they gave and repeated misdiagnosis. sinc d2003 i beeen damaged repeatedl

i now have 2 dystonias', myoconis (may be dyskensia full bbody but think dystonia, i had acute dystonia with seizures, pust down as pusedo seizures vinvloing the trunk of my body, after my records got falsified after the first brain body damager.

stay away from being phsycraitrized, that is what they are doing. go to another neurolgoist that specializes in movement distorders or spasmodic, have spasmodic as well spreading thorugh my body badly on top of the muscle a nd ligament daamge to my whole body not on medical records.

I cried this am too, and I go on. you have support, use them. go to another hosptial, neurolgist, even a city closer, I don't know where you are. i bedhousebound they leave me like this.

you have people to support u, u can get around, so do it. it's ok to be angry, you have to focus on soluations, something I did for years but everything we tried back fried, i not so positiver now and very angry

i was told about stress as well for my seizures, later said pshcyatric to cover for a drug i was on for 11 years, i had a positive seizure test, stress worsens siezures, dystonia, it causes heart attacks, it does not make them pesudo anything.

they are overboard on this and alot of people here have gone through this and many doctors for some time, until they get one that knows was the heck they are doing, it's degrading, and madding. it one of hte reasons, i have many, of allowing myself even though we are going to push for it again to be hosptialized for every thing, because they may try to pull this again. and the main one, and one of the best is where i lived and was involved in my case already.

venting is good. get a movement disorder specialst and one if you can find others are seeing in ur area.

namaste

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Permalink Reply by Mark Crawmer on October 21, 2009 at 5:07am

I am new at this, I am much older than you I see and hear your fustration with dystonia. I hope you will try taking out your frustration on correcting the emotional with sitting slowly down in a chair and closing your eyes and concentrate on being somewhere else by meditation. When my pain is the greatest I meditate as best I can and then I use pressure points with my palm of my hands and fingers to push the pain away. I know this sounds crazy, but try it a few times, I think you will be suprised at the instant change. That time of relief is worth it ...push up on the chin and finger on where it hurts slowly push in and release you will feel the changes yes it comes back, but it works...try streaching also, Ti Chi is good...

Sincerely,

The Old Man

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Permalink Reply by chyvonneb on October 24, 2009 at 10:38am

Great idea!

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Permalink Reply by RevWagner on October 22, 2009 at 6:32am

i feel your pain. The same has happened to me. The docs at the UofM told me that they diagnose all dystonia as psychogenic if they are not positive that it is something else. I am homebound and they want to send phycologist by the house to talk to me.

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Permalink Reply by chyvonneb on October 24, 2009 at 10:33am

Sorry this has happened. I am willing to predict that many of us with Dystonia and other Neurological disorders have been referred to a psych. Actually, we all need one after dealing with these bizarre illnesses. However, it is so unfair for doctors to make the diagnosis of psychogenic when they don't understand what is going on. It would be best to simply say,
"I do not know anything about your situation. I can refer you to another specialist." But, sometimes I think their egos get in the way. Good luck and I'm prayin' for you and all of us who are afflicted with this type of emotional abuse as a result of getting ill which is no fault of our own!!!!!

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Permalink Reply by lisa w on November 21, 2009 at 4:10pm

You hit the nail on the head!!

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Permalink Reply by Rosemary on October 24, 2009 at 11:45pm

I have Generalized Dystonia. I had it for decades before it was diagnosed properly. I also have a failed neck surgery, which is pretty tough, especially with the Dystonia. In my case, no one ever used the word "psychogenic" in any diagnosis. I do, however, see a Psychiatrist once every two months and went to a Psychologist 1-2 times a month from 2002-2006. (I had a total of 3 neck surgeries- I started to see both these people after the second failed, and I was devastated at the reality of loosing my career and physical abilities). I stopped going to the Psychologist only because she retired.

I guess I have a hard time understanding the aversion to seeing a Psychiatrist or a Psychologist. I am extremely grateful to them for helping and supporting me through some physical and emotional challenges. Maybe I have been lucky with the Psychiatrist I go to and the Psychologist I saw, but who wouldn't benefit from seeing a good mental health specialist? If nothing else, they might enable you to understand your condition/yourself better, or help to confirm that your condition is not psychogenic, or offer some other insight.

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Permalink Reply by marie on October 25, 2009 at 12:12am

rosemary-i dont have an aversion to anyone in the mental heath field and ive had mh treatment in the past.it very hard when your body does all these strange things and instead of your dr doing everyrhing they can and make sure you have access to the best rx possible and wants to team with you and other professionals to give you the best life possible...says its psychogenicso i cant treat you .thenyou go back to mh prof.youve seen and they say your fine except your stressed your body is doing bizarre things and the drs are wrong.then you try new couselors and they think your coping well and finally you throw up your arms in frustration.marie

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Permalink Reply by Rosemary on October 25, 2009 at 11:34am

Marie: I am very, very sorry for your frustration. First off, I am not sure that Docs can do that much for some conditions, even if it isn't psychogenic. And I agree that at times they don't try hard enough and they often disappoint. Sometimes- as with failed surgeries- they hurt you, seriously and most likely forever. Sometimes the drugs make you worse, not better, or they have side effects that outweigh the benefits. Again. I am very, very sorry for your frustration. Life in the medical industrial complex is usually not much fun. You can't take stupid docs comments personally. You have to be very proactive and keep on moving until your get a better answer. They are working under time constraints and the prejudice of there own training and experience. Be patient. If you keep at it, they will get it right eventually.

P.S. I was married when my Gen Dystonia symptoms moved to a new level of severity, but it was before a diagnosis. My husband walked out, claiming "I can't see you do this to yourself" and later divorced me under "irreconcileable differences" since I could no longer do all the physical things we had done.

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