morphine pill
below is a post from another dystonia board..
The past year dystonia has really taken a toll on me and my family. The seizure meds, anti depressants, botox and muscle relaxers have taken me on an emotional roller coaster ride. Dystonia took my speech to a point where I was having to learn sign language as a new means of communication. My muscles in my face were fighting a constant battle with eachother leaving my facial features distorted. Meiges had my eyes clamped shut any time I ventured outside into the sun, or from a dark room into a brighter room. I was having a dystonic storm one night. I had already taken my meds so I really didn't know what to do. My husband gave me a lortab and the symptoms settled down and I noticed within an hour all of my symptoms had subsided and my face had returned to normal. I even had my speech back for a bit. I went to my neurologist and explaned to him how the lortabs had helped. But he just looked at me and prescribed yet another seizure medicine. And just like the other meds he had put me on, it had little effect and put me into yet another deep depression. I had enough and took myself slowly off the med. I went to my family practice doctor and explained the negative effects my prescribed meds were having on me and told him about the lortab. He was leary, but he decided to try another form of pain killer that would stay in my system, rather than work for a few hours at a time. So he put me on morphine pills. For the last month I have been almost totally symptom free from my dystonia with the morphine pills. I can go outside in the sunlight without my eyes clamping shut, I can drive again, my speech has been totally normal, and I have had little pulling in my face. That one little pill is doing by itself what all of the other meds put together couldn't do. The side effects are nausea and constipation, but those are easily kept under control with benedryl and miraMAX. The depression is gone and for the first time in a year I feel like I've gotten my life back. I take 2 pills a day. One every 12 hours. The dystonia has slipped out here and there, but never for more than a day and then I've been back to good. My doctor started me at the lowest miligram possible, so that if the meds get to where they aren't working so well, we can go up in miligrams from there. I am so grateful that my doctor took the time to really listen to me. Remember that you know your body well, and you don't have to always take what the doctor recommends as the only way to go. Stand up for yourself and be your own best advocate.
i have the baclofen pump and a few months ago when my symptoms started getting worse we tried adding morphine to the baclofen but it had the reverse results..i also use the fental patch for pain but have never heard of a morphine pill..i am interested to hear if anyone has heard of or been prescribed a morphine pill..and if so what results did you have?
thanks!!
karen
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The past year dystonia has really taken a toll on me and my family. The seizure meds, anti depressants, botox and muscle relaxers have taken me on an emotional roller coaster ride. Dystonia took my speech to a point where I was having to learn sign language as a new means of communication. My muscles in my face were fighting a constant battle with eachother leaving my facial features distorted. Meiges had my eyes clamped shut any time I ventured outside into the sun, or from a dark room into a brighter room. I was having a dystonic storm one night. I had already taken my meds so I really didn't know what to do. My husband gave me a lortab and the symptoms settled down and I noticed within an hour all of my symptoms had subsided and my face had returned to normal. I even had my speech back for a bit. I went to my neurologist and explaned to him how the lortabs had helped. But he just looked at me and prescribed yet another seizure medicine. And just like the other meds he had put me on, it had little effect and put me into yet another deep depression. I had enough and took myself slowly off the med. I went to my family practice doctor and explained the negative effects my prescribed meds were having on me and told him about the lortab. He was leary, but he decided to try another form of pain killer that would stay in my system, rather than work for a few hours at a time. So he put me on morphine pills. For the last month I have been almost totally symptom free from my dystonia with the morphine pills. I can go outside in the sunlight without my eyes clamping shut, I can drive again, my speech has been totally normal, and I have had little pulling in my face. That one little pill is doing by itself what all of the other meds put together couldn't do. The side effects are nausea and constipation, but those are easily kept under control with benedryl and miraMAX. The depression is gone and for the first time in a year I feel like I've gotten my life back. I take 2 pills a day. One every 12 hours. The dystonia has slipped out here and there, but never for more than a day and then I've been back to good. My doctor started me at the lowest miligram possible, so that if the meds get to where they aren't working so well, we can go up in miligrams from there. I am so grateful that my doctor took the time to really listen to me. Remember that you know your body well, and you don't have to always take what the doctor recommends as the only way to go. Stand up for yourself and be your own best advocate.
i have the baclofen pump and a few months ago when my symptoms started getting worse we tried adding morphine to the baclofen but it had the reverse results..i also use the fental patch for pain but have never heard of a morphine pill..i am interested to hear if anyone has heard of or been prescribed a morphine pill..and if so what results did you have?
thanks!!
karen
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Replies to This Discussion
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Permalink Reply by Mo on -
i have had no personal experience with morphine or morphine pills and others i know never mentioned it. sorry that i could not help you. i could research it and see what i come up with. let me know if you have a need for this. mo
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Permalink Reply by karen on -
hi matrix..the post wasn't about me taking the morphine pill..i posted a post from a lady from another dytonia board who had taken the pill and had the miraculos effects..i was just asking if anyone had experience with taking the pill and what kind of results they had..
karen
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Permalink Reply by beka on -
Hi karen - I personally have never heard of morphine being prescribed either for dystonia.. but what ever helps, helps.. So how are you doing now ? Is it long acting morphine like Morphine CR that you take and have you been able to wean yourself off any of the other drugs SLOWLY ?
I am thinking that these docs are prescribing too many drug cocktails for us. Time for a new post ???
beka
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Permalink Reply by Stace on -
Hi, I have been taking extended release morphine for years, it has been a life saver. It releases a little bit of medicine every two hours over a 12 hour period. The timing is just right. The only downfall is that like many others, it is a controlled substance so I only get it once a month and have to GO IN to dr's office to pick it up myself. This is not always easy for me. But nothing about dealing with dystonia is easy. Faith gets me through the tuffest storms, and that includes knowing how to juggle every aspect and asking for help when my pride wants to do it all on my own. Blessings to you all and I am thankful that you are here.
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Permalink Reply by Elaine on -
Karen,
I was put on Dilaudid , which is similar to morphine.
For (possible) Fibro pain.
I was taking 2 mg every 4 hours and my Dr just today, put me on the long acting 2 x per day, same as you.
I can also add 2 mg as needed.
Though the past year I had also been put on seizure meds, which I feel also made my episodes much worse.
I was SO EXTREMELY fatigued. I don't believe a person could be more tired.
This caused me to have severe movements.
When I was taken off of the seizure meds, my movements remained consistent.
And have remained so for at least 6 months now.
The Neuro refused to listen to me when I said the seizure meds exhausted me. And that exhaustion makes the
movements worse.
Reading posts like yours that are so similar to me, makes me believe in myself more.
Thanks for posting your experience.
Elaine
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Permalink Reply by lisa w on -
I have been on many opiate pain killers for 19 yrs. I f I hadn't had pain relief I know I would have blown my head off just to make the pain stop. The only time I'm not in pain is when I'm sleeping. The pain and spasm return with a vengence when I'm barely awake. There are alot of morphine pills several that last 24 hrs. Granted they are highly addictive. For me it was worth the trade off of being able to function and raise my children. The bacflen pump did me no good whatsoever.Dr. tried alot of drugs in it even prialt(made from snail toxin) had poor results all the way around. For some it's a godsend. I had mine for seven yrs. I'd never get another one.Everyone is different.
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