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Share your thoughts about this venture ??

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Actress Vanessa Williams has never been shy about talking about her use of anti-wrinkle injections. Now she is teaming up with ( ALLERGAN ) Botox Cosmetics to front their campaign “Botox Cosmetic: Express Success.” According to reports, the venture seeks to assist underprivileged women by providing clothing and occupational advice for the working world.

Williams was quoted in a statement on the company’s website as saying, “As a working woman and actress, I know how important it is to `look the part` in any professional setting.” The Ugly Betty actress appeals in her statement for others to get involved in the worthwhile cause.
The effort will commence on June 30, and there is a website set up to take pledges. Ugly Betty premiered on ABC in 2006 and stars America Ferrera in the title role.
Written by the CareFair.com Editorial Team.

What do you think about this ?
beka

Tags: actress, allergan, betty, botox, campaign, cosmetic, dystonia, hollywood, ugly, williams

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thanks for giving me a new blog topic :P
I cant even begin to think of reasons why this is not tacky.
Please add your link somewhere here so others can find it easily Jenn... Boy,was I surprised ??

What do you think , Jenn ? Profit driven ? Or patient driven ???

beka
Reading this press release , I found, PERSONALLY, disappointing...Is it to increase sales of Botox Cosmetic during this lousy economy ??? When are we, as patients, going to receive the attention warranted and deserved due to the use of Botox Medical with a Hollywood Star as a representative for us as a disorder....still thinking about this...
Actually don't know what to say.. other than thinking that for Allergan $$$ is the bottom line...

Uhmm..
beka
Personally, I think this sucks. Although Botox has not alleviated my cd/torticollis I do not wish it to be hailed as the almighty wrinkle reducer either...but whatever works for Allergan...I'm sure they receive more $$ from personal profit than from the few insurance companies that cover injections for movement disorders.
Thanks for the topic Beka
At a recent support group meeting of ours I mentioned to the Allergan rep that they should subsidize Botox for medical purposes, paid for by the rich and vain. The biggest problem that I have with Allergan is that they seem to run a boatload of commercials for all of their "drugs" yet fail to mention dystonia in any of their ads. You see ads for RA, IBS, and just about every other acronym you can think of, yet nothing about dystonia.

Face it folks, dystonia is apparently not glamorous enough for Hollywood to take on. Where's the profit in it? That's why it falls to all of us to become our own advocates and to not be afraid to go out in public and show the world what it means. I know this is probably a little odd coming from someone who does not actually have dystonia, but I have tried to instill in my wife the need for her to put a "face" on it at least here locally.
I completely agree with you , Ernie , 100 %.

beka
You said it better than I could, Ernie, so I won't rewrite your post except to add one point. Most of us are grown adults, right? Maybe even a little long in the tooth, huh? Then why are we so filled with righteous indignation when a pharmaceutical company does a little charity work to drum up some easy exposure? We all think we know what they "should" do or what is the "right thing" to do, etc. Folks, we also all know it's not a perfect world. Last time I checked, Allergan was a for profit enterprise. Is it tacky? That's a matter of opinion...I would say probably. Does it make me a little sad to see this kind of campaign instead of a psa with some uber famous celebrity urging the need to fund dystonia research? Of course. Unfortunately, that's not going to happen until said uber celebrity acquires the disease. I truly admire and respect Michael J. Fox for his work, however, would the MFJ Foundation be in existence if he didn't have Parkinson's? I think we all know the answer to that question.

Maybe I'm all wet, but I just don't see the point in getting all exercised about things like this. It is what it is. There's nothing to be gained by wasting energy dumping on Allergan. All we can do is what we're doing and hope for the best.

Just my two cents...maybe worth only one.

All the best,
Joe
But, then Joe -
I have to ask the question " What are We Doing ? " Holding a summer Garage sale sure isn't going to bring in the necessary research funds ? Bantering and bickering like mad amongst ourselves about BB moderators, etc. and posts certain isn't going to help ?? I think the point here is the fact that Allergan NEVER has attempted to create a PSA that applies to Dystonia. WHY NOT ? Because it is not glamourous enough ? Well, neither is cancer, MS, chron's disease, AIDS, etc. What disease is glamourous ? I know of none.
No famous celebrities with dystonia ?
Let me put the list together !! There are plenty !!!


Unfortunatley, Ernie is correct that not many of us will place ourselves in the spotlight. I know I have over the last 10 years. But, is it truly embarrassment about the disease or something entirely different ?
I applaud Allergan for providing many grants $$ to the various dystonia nonprofits, but IS that ENOUGH ?

Let's hear your opinion on this topic.

beka
Michael J. Fox said it best when he said something to the effect of "vanity is the first thing to go". A HUGE thank you to Beka for putting herself out there and working for awareness. I know that many people in our support group don't like to go out in public for fear of being stared at. This is something that we have to work on so people with dystonia can enlighten others as to what their condition is.

As far as Allergan (et al) is concerned, could it be that doing psa's for research funding could ultimately end up in their demise as far as a treatment supplier? My thought is more along the lines of commercials (like those that currently air) asking you if you have these symptoms and encourage you to "talk to your doctor" about treatments that they provide. THAT would be a huge coup in getting information out there, as well as possible diagnosis for many who struggle for years to find out what their problem is.

Ernie
Yes- Ernie - I too think strongly that EVERYONE needs to come out of hiding. How else are we going to make an impact .. Change the world for a better place...( Ok , too much MJackson viewing lately...) Do agree that comercials like those for Cymbalta, Albify, Advair could work for Botox Medical.
But, how do we make everyone come out ??
beka
There is strength in numbers. It's hardest to go it alone and expect to make any sort of impact. What I would love to see is a group of "dystoniacs" (my made-up word for dystonia patients) do something along the lines of a walk around a capital building (or whatever) carying signs. You could say things like "Dystonia is not a third world country" or "Ask me why I'm shaking". No need to make an announcement, the media would suddenly rush over to see what the deal is.

I just have no idea on how to really organize such a thing. It would be nice to do something at a coordinated national level. Have a day when everyone shows up at multiple locations. The media would think that it's organized anarchy! ;)

Ernie
Ernie - I too have thought about this...Even doing it here in Central park in NYC...I have passed out magnets, brochures by myself outside the Met, but it feels awfully lonely out there... If we could get away from this idea or notion of who belongs to what group and why etc..( www.care4dystonia.org is open to anyone, no membership required..no allegiance needed either ...) and simply UNITE in ONE SUCH EVENT - can you imagine the impact ??

Anyone else ??? But we tend to mull these ideas over and over again, rehashing them year after year, never coming to a consensus to JUST DO IT. I certainly can't organize something like this on my own....Well, may be...uhmm..?

beka

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