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Dystonia Neuro Movement Disorder Discussions (431)

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beka

Write a " Dear Dystonia " letter here

The last two weeks have simply been surprising. I have been overwhelmed by the events of the media coverage about dystonia. It all has be...

Started by beka

59 Nov 30
Reply by Lene
bkaren46

Quote says it all!!!!

Writen by Martha Luther King. "Our lives begin to end the day we become silent about things that matter". And this really hit home for me...

Started by bkaren46

5 Nov 29
Reply by bkaren46
Mo

IS IT ESSENTIAL TREMOR OR DYSTONIA?

As some or many of you know, I am going to see Dr. Young in Southern Calif in about a week and a half. I have seen 6 sepcialists in the ...

Started by Mo

20 Nov 29
Reply by Mo
beka

Your Type of Dystonia and Current Treatment..

A few people have written to me asking me if I would create this post to help clarify and make it easier for Forum members ( Yu- Wooo...O...

Started by beka

69 Nov 28
Reply by bkaren46
lilly marie

anyone messed up by botox injection?

3 years ago, a neurologist i was referred to, injected me wiht botox in three areas; thru he sole of my left foot, my left hand and on my...

Started by lilly marie

3 Nov 26
Reply by lilly marie
tremors

sore spot in head

Not sure what this is something new. I have a knot in my head and actually hurts when rubbed or touch it, or run fingers through hair. I ...

Started by tremors

0 Nov 26
beka

Do you have a strong cough ?

This may sound like a strange, weird question, but I am wondering about whether or not others have experinced a change in the strenght of...

Started by beka

3 Nov 25
Reply by marie
Elaine

I AM ANGRY ....Pyschogenic lazy bleeping doctoring...

After my hours of crying, I decided to post. I don't know what anyone is going to think of me here? After seeing the Neuro a total of TW...

Started by Elaine

78 Nov 25
Reply by Elaine
Elaine

Can anyone HELP me. My Catch 22 - Paroxysmal dystonia

HI I've written before that I strongly believe that I have Paroxysmal dystonia, but that the Neuro I had, won't even consider it. I am fo...

Started by Elaine

27 Nov 24
Reply by Elaine
Thorns

Muscle Spasms that feel like a heart attack

I'm asking everyone if they have experienced this type of muscle spasm, it happened the first time when I was away on vacation in Punta C...

Started by Thorns

26 Nov 23
Reply by Jenn

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