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Dystonia Neuro Movement Disorder Discussions (431)

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Rebekah

New Issue of Dystonia Living Magazine

Just posting to let you know the New issue of Dystonia Living Magazine is published online. Click here to read. The magazine is by peopl...

Started by Rebekah

4 Nov 16
Reply by marie
karen

morphine pill

below is a post from another dystonia board.. The past year dystonia has really taken a toll on me and my family. The seizure meds, anti...

Started by karen

6 Nov 14
Reply by lisa w
beka

What is it that Persons with Dystonia truly WANT ? Is a Cure being held back ???

Lately I have wrestled with this question as I get more and more emails. More often than not, being unsure what the question that is bein...

Started by beka

75 Nov 14
Reply by lisa w
lisa w

er drs

One of the most frightening things of er docs most know less about dystonia than I do, and what works for me. After 19 years I have learn...

Started by lisa w

0 Nov 14
sisdailey

Just answering the question of: What brings you here? listed at the top of my page here.

Thanks Karen for helping me answer this question. The internet and this wonderful place have been such a blessing to me and i'm sure eve...

Started by sisdailey

6 Nov 12
Reply by onmom
Jen

Mitochondrial disease and dystonia

Hi all, I am in the process of being evaluated for mitochondrial disease. In the process I have met several adults with mito that have dy...

Started by Jen

26 Nov 12
Reply by Deanna
noelv

American Dystonia Society is now active

It is now officially a non-profit organization in the State of New Jersey and has a Federal Tax ID number. I will open a bank account and...

Started by noelv

10 Nov 11
Reply by Rebekah
Kimberly Nelson

Question about Dystonia

Hi. I am not sure this is the problem but I'm trying to figure it out. My son is 18 - for the past year or so he has started really twitc...

Started by Kimberly Nelson

16 Nov 8
Reply by ramona
noelv

American Dystonia Society Leadership

This foundation was formed by me and I am it's CEO and the only signatory on the accounts that have been set up for ADS. It is OUR group ...

Started by noelv

4 Nov 7
Reply by noelv
Paul Winter

Flu Vaccine Caused Dystonia

Some of you will know that my health problems originated within 48 hours of having a flu vaccination. I'd suffered from a bug the week be...

Started by Paul Winter

33 Nov 6
Reply by jeffinmo

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