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| Discussions | Replies | Latest Activity |
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Beka- Plaquenil and Dystonia?Anyone know anything about plaquenil and dystonia? Seems to me I saw it on a no-no list not long ago? Apparently my Lupus that I had, then… Started by Ellen S |
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Sep. 2, 2008 Reply by Ellen S |
Just diagnosed with Cervical Dystonia - help and advice needed!!Hi everyone. i'm new to this site, I'm from Essex in England.....i was diagnosed with cervical dystonia 2 months ago but my neck has been s… Started by rachelbates |
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Sep. 2, 2008 Reply by beka |
How many other things could this be? daughter updateMy daughter has an appt with her neuro this week. She is going for an EMG Thursday. PT has made her pain worse, Pain in the neck & her… Started by Janet 50 |
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Sep. 1, 2008 Reply by Ellen S |
nerve abalationHi Beka, I have a question, hope you can help or tell me where I might find the answer. My pain doctor told me today that he is considering… Started by tremors |
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Aug. 31, 2008 Reply by Thorns |
What is Worse with dystonia for You- the Pain or the " Spasms "?A few newly posted conversations, so I ask all of you to join in and share your thoughts. I have heard conflicting accounts from patients r… Started by beka |
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Aug. 28, 2008 Reply by beka |
Question: OTC MedsWhat OTC do you stay away from and why? Do you belive minor infections such as UTI, colds, Flu and such affect how you feel? Just curious… Started by Cindyrella |
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Aug. 27, 2008 Reply by karen |
Focal ( Foot) DystoniaIn a jist I went from Early Onset PD to Focal Dystnoia. Without writing the whole DX/tx process as you can tell I took a load of meds for a… Started by Cindyrella |
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Aug. 27, 2008 Reply by Cindyrella |
The Genetics of Dystonia- DYT1Hi - If you are one of those special cases who does carry the DYT1 gene or a non-carrier, but the disorder runs in your family, consider po… Started by beka |
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Aug. 26, 2008 Reply by Ellen S |
What's your current method of controlling ST and % of your awareness to it?Hi eveyone, I have tried umpteen procedures and drugs, etc. and am presently taking only Clonazepam. I take about 1 mg per day and live wit… Started by Karen |
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Aug. 8, 2008 Reply by sisdailey |
Thanks to other blogs and groupsRobert, a member of one of the most active Yahoo Dystonia groups, is a real supporter of this forum. I would like to publicly thank him for… Started by Ellen S |
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Aug. 7, 2008 Reply by Ellen S |
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