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Dystonia Neuro Movement Disorder Discussions (431)

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Ellen S

Beka- Plaquenil and Dystonia?

Anyone know anything about plaquenil and dystonia? Seems to me I saw it on a no-no list not long ago? Apparently my Lupus that I had, then…

Started by Ellen S

3 Sep. 2, 2008
Reply by Ellen S
rachelbates

Just diagnosed with Cervical Dystonia - help and advice needed!!

Hi everyone. i'm new to this site, I'm from Essex in England.....i was diagnosed with cervical dystonia 2 months ago but my neck has been s…

Started by rachelbates

14 Sep. 2, 2008
Reply by beka
Janet 50

How many other things could this be? daughter update

My daughter has an appt with her neuro this week. She is going for an EMG Thursday. PT has made her pain worse, Pain in the neck & her…

Started by Janet 50

3 Sep. 1, 2008
Reply by Ellen S
tremors

nerve abalation

Hi Beka, I have a question, hope you can help or tell me where I might find the answer. My pain doctor told me today that he is considering…

Started by tremors

3 Aug. 31, 2008
Reply by Thorns
beka

What is Worse with dystonia for You- the Pain or the " Spasms "?

A few newly posted conversations, so I ask all of you to join in and share your thoughts. I have heard conflicting accounts from patients r…

Started by beka

21 Aug. 28, 2008
Reply by beka
Cindyrella

Question: OTC Meds

What OTC do you stay away from and why? Do you belive minor infections such as UTI, colds, Flu and such affect how you feel? Just curious…

Started by Cindyrella

6 Aug. 27, 2008
Reply by karen
Cindyrella

Focal ( Foot) Dystonia

In a jist I went from Early Onset PD to Focal Dystnoia. Without writing the whole DX/tx process as you can tell I took a load of meds for a…

Started by Cindyrella

2 Aug. 27, 2008
Reply by Cindyrella
beka

The Genetics of Dystonia- DYT1

Hi - If you are one of those special cases who does carry the DYT1 gene or a non-carrier, but the disorder runs in your family, consider po…

Started by beka

9 Aug. 26, 2008
Reply by Ellen S
Karen

What's your current method of controlling ST and % of your awareness to it?

Hi eveyone, I have tried umpteen procedures and drugs, etc. and am presently taking only Clonazepam. I take about 1 mg per day and live wit…

Started by Karen

2 Aug. 8, 2008
Reply by sisdailey
Ellen S

Thanks to other blogs and groups

Robert, a member of one of the most active Yahoo Dystonia groups, is a real supporter of this forum. I would like to publicly thank him for…

Started by Ellen S

6 Aug. 7, 2008
Reply by Ellen S

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