Dystonia Neuro Movement Disorder Discussions (431)
| Discussions | Replies | Latest Activity |
|---|---|---|
We need to effect change in the status quo to get better progress in research and patient advocacy.We need a real grassroots movement to effect change in the Dystonia Community. We want to speak with one real voice and one organization ... Started by noelv |
13 |
Nov 6 Reply by noelv |
Dystonia MedicationsOriginal Post by Community Moderator Ellen Schnakenberg Susy was the one who posted on another thread about medications. I think this is... Started by Ellen S |
112 |
Nov 5 Reply by beka |
Headaches after BotoxI have had Botox twice now. For the most part the dystonia is calmed down. However, I have had weird continuous headaches since the shots... Started by Richmanarnp |
5 |
Nov 5 Reply by onmom |
Movement Test For DystoniaI went to the Mayo Clinic and was Dx with Dystonia by a movement Neauro. He is sending me to Dallas for a special movement test before he... Started by freida may |
10 |
Nov 5 Reply by Rosemary |
Dystonia and the painHello, I am new to the site. I would just like to talk to someone that has it as well and can clue me in on the reality of what is happen... Started by Lilly7 |
9 |
Nov 5 Reply by beka |
RLS anyone?There are several discussions here that have turned into information sharing about RLS (Restless Leg Syndrome). I was going to add to an ... Started by Ellen S |
6 |
Nov 4 Reply by Rosemary |
Jaw/Ear pain from using a headset?Here's another one of the great mysteries of my life that maybe you guys might have some insight on.. Ive already solved: Q. Why is one ... Started by Jenn |
5 |
Nov 3 Reply by Jenn |
Curious. How long are your "good spells"Just out of curiosity. I was wondering how many of you are constantly in a dystonic state? For those of you who are what kind of dystonia... Started by BDrake |
24 |
Nov 3 Reply by Elaine |
NO POSTS COMING TO ME??HI No posts are coming to my private email. Do I have something that is not set properly? Elaine Started by Elaine |
7 |
Nov 3 Reply by Elaine |
Exercise and Dystonia ParticipationDo you participate in a specific exercise or physical therapy program that has assisted in relieving dystonia symptoms ? What sort of pro... Started by beka |
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Nov 2 Reply by Rosemary |
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