WEGO Health

Dystonia Neuro Movement Disorder Discussions (431)

← Back to Dystonia Neuro Movement Disorder
Discussions Replies Latest Activity
Monica Coogan

Stimulus Sensitive Myoclonus_ Can it be Drug Induced

Please tell me about any personal experience or resources you have concerning this condition. Thank you

Started by Monica Coogan

0 Nov 2
BDrake

Tired of being referred.

I've got a topic I'd like to discuss In the alcohol thread it was mentioned that "thinking outside the box" could be your doctor referri...

Started by BDrake

38 Nov 2
Reply by Monica Coogan
Monica Coogan

Drug-Induced Acute Dystonia and Conversion Disorder- Any Stories, Experience, or Input?

I'm Monica in New Orleans, LA. I want to tell my husband's story and apparently, something that has happened to many others.My husband (a...

Started by Monica Coogan

2 Nov 2
Reply by Monica Coogan
Monica Coogan

Medication Induced Dystonia, Anyone Familiar? Damn that Conversion Disorder Diagnosis Blahhh

I'm Monica in New Orleans, LA. I can COMPLETELY relate to what is happening to you and apparently, many others.My husband (an army vet) o...

Started by Monica Coogan

12 Nov 1
Reply by Monica Coogan
noelv

What to do when your Botox shots are delayed?

Maybe that's why I'm fired up about the duplication of overhead in our Dystonia foundations. My Botox shots are wearing off. I've been on...

Started by noelv

8 Nov 1
Reply by kdorff
Donna

Received The Dystonia Patient as a birthday gift

I just received the Dystonia Patient book for my birthday today. Although it is meant primarily for doctors and not really for us, it doe...

Started by Donna

5 Nov 1
Reply by beka
Lizzy Holder

"Twisted People"

That was the name of the article in the "National Enquirer, of all places, close to 20 years ago, written by the DMRF. I sent a letter wi...

Started by Lizzy Holder

26 Nov 1
Reply by beka
Stace

Dystonia on a schedule?

I have learned, over the years that there is a routine that works, for the most part. Physical and emotional stress add to dystonic storm...

Started by Stace

3 Oct 25
Reply by noelv
Stace

If we say nothing, nothing gets done.

I sat in on a meeting of "blind entrepreuers" yesterday , with a friend who is blind. I heard a statement which fired me up and renewed t...

Started by Stace

1 Oct 25
Reply by noelv
noelv

Air Travel

I'm taking a cross country flight and am a little worried. I'll be alone and travelling by air with Dystonia for the first time. I've tim...

Started by noelv

19 Oct 25
Reply by noelv

RSS

© 2009   Created by Marie

Badges  |  Report an Issue  |  Privacy  |  Terms of Service