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Dystonia Neuro Movement Disorder Discussions (431)

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marie

if you have paroximal dyskinesia or pnkd ,could you reply to this

my ot and pt strongly feel this should be my dx but its not confirmed by a movement specialist.given the rareness of this i would appreci...

Started by marie

6 Oct 25
Reply by marie
Lene

UNIVERSAL HEALTH CARE REFORM BILL 3200

I thought perhaps someone should start a conversation about the new Health Care Reform that is trying to be passed. I am standing here in...

Started by Lene

29 Oct 23
Reply by Lene
sisdailey

Update on Alex from the Doctors Show

A quick note to urge you to watch or record “THE DOCTORS” this coming Wed., 10/14 when ALEX makes a return appearance, along with Montel ...

Started by sisdailey

5 Oct 22
Reply by Thorns
beka

Spinal Cord stimulators- PAIN CONTROL

A friend of mine has joined the Forum,which is wonderful as she will bring in another perspective on dealing with pain. Her name is Krist...

Started by beka

51 Oct 20
Reply by beka
Rosemary

Neuromodulation: "Peripheral Field Stimulation" for Pain?

Hi- I have a failed fusion (C4-6) along with Generalized Dystonia. Details about the surgery are in the "P.S." at bottom of page so you ...

Started by Rosemary

2 Oct 19
Reply by Rosemary
sisdailey

Need help to get a pressure wound to heal.

I have a pressure wound on my ear. I've been ashamed to post, but I thought wow ! I am among friends here and it might just be that someo...

Started by sisdailey

16 Oct 19
Reply by beka
Ellen S

Beka- Whate has happened to Care4Dystonia? It's missing...

Beka, I've been trying to go to Care4Dystonia's website, but it appears to be down. No links are working, and there is only a homepage wi...

Started by Ellen S

3 Oct 19
Reply by beka
Rosemary

B Vitamins and Movement Disorders

A number of people mention B vitamins in relation to Dystonia. I had kind of poohed-poohed it because I eat a very healthy diet (having d...

Started by Rosemary

7 Oct 12
Reply by Rosemary
marie

does the ability to distract prove its psychogenic or not

becka and elaine-im piggy backing this discussion off your lazy drs post where you discussed distractability as being proof or not proof ...

Started by marie

6 Oct 12
Reply by lexiesmom
Jenn

Environmental Toxins Triggring Dystonia

I know this is always referred to.. but has anyone: - had experience with toxic chemicals in the air triggering Dystonia attacks? - know ...

Started by Jenn

6 Oct 11
Reply by Rosemary

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