What would you like to know from other migraineurs?

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Permalink Reply by Nikki Albert on May 29, 2008 at 1:45am

I am not sure of all the polls that have been created, as I am new member. But a good one would be ask what aura symtpms do they get, which is the more pervasive, which they hate the most. The type of medications they use: preventative, abortive, rescue, OTC, or all above. My own questions would be how many get AIWS. How many people find sleep effect their migraines and do they get 'migraine' dreams.

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Permalink Reply by Marie on May 29, 2008 at 9:11am

Hi Nikki,

Thanks so much for the suggestions! You've got some great tips in there.

If you're interested in talking more about Alice in Wonderland Syndrome, you might want to check out the discussion taking place here: http://community.wegohealth.com/group/migraine/forum/topic/show?id=...

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Permalink Reply by Nikki Albert on June 7, 2008 at 2:43am

Thanks! I am very interested in others experiences with AIWS, as it is so peculiar and so intense.

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Permalink Reply by Ellen S on June 9, 2008 at 9:37am

Great ideas Nikki!

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Permalink Reply by Ellen S on June 10, 2008 at 12:30pm

I have several questions, but I would like to know:

What do you do when you receive information from your doctor that you don't understand?

How much time does your doctor spend with you on average?

Are you happy with your treatment and progress and overall care with your present doctor?

How many doctors have you been treated by, and why did you leave previous physicians?

How many ER visits do you find are necessary per year?

Do you have a treatment plan with your doctor?

Do you think that you are making progress with your present treatment plan?

How do you (or Do you) manage your time when not in the middle of a Migraine attack?

How many medications have you tried since the beginning of your Migraine attacks?

How do you keep track of your medicines and medical records?

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Permalink Reply by Janeen on August 12, 2008 at 12:11pm

Here's a couple to add to Ellen's:

What type of doctor treats your migraines?

In what season do you seem to get the most migraines?

What part of your daily life is most affected by your migraines?

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