Bud's Page
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Hi,
I have been researching info on Dystonia for over a year. I had never heard of Microvascular Decompression until doing a search on the computer today. Then, I decided to put those words into a search on WeGo Health. Wow Beka, you've talked ab...
Hello Bud - Thanks for bringing up this topic. I personally have nnever heard of this form of surgery. I don't know why it is not discussed or hasn't been. I have taken a look at the site and wrote the Institute for more data pertaining to the out...
Hi Bud:
First of all I am new to this board and I just joined today after reading your story.
I am from Pittsburgh, Pa and back in 1992 Dr. Jho did a surgery on me called nerve decompression. He was assisted by Dr. Janetta. At the time of my surge...
I wrote a blog on the groups forum 2 hrs ago. take a look. It is titled cure for dystonia that noone talks about. I have been trying to help my wife find a cure, not just meds. Maybe there is some hope on the link I provided. Be well.
Been researching for a cure,not meds, for my wife's CD. Much written about two things being done at the JHO Institute for Minimally Invasive Neurosurgery in Pittsburg,PA. 1. If you have a condition where blood vessels cross and compress cranial ne...
My wife has focal SD with left turning head and neck spasms. Four times Botox used at 300,300,400,400 dosages. Maybe 10% improvement then right back after 6 weeks. Using movement disorder specialist at Robert Wood Johnson Hospital New Brunswick,NJ...
This group is moderated and hosted by Beka Serdans, RN, MS, NP, founder of Care4Dystonia.org.
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- More about me (my health interests and reasons for joining WEGO Health)
- My wife has had SD for 18 mo. No help from 4 tries at Botox injections. Looking for help to get relief and her back to a more normal life. Also my coping with the mental strain in our relationship.
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