Because I do not have severe posturing, most people (including members of my family) do not take dystonia seriously. It seems one must have a physical deformity before you are believed to be in pain and affected by dystonia. I, for one, am not sure…
cmf3225:
I use alternative treatment for repetitive thinking and insomnia. A lot tf the symptoms are need for me to control somethng. I can't control my dystonia, I couldn't control the fact that I can no longer work because of it - so I start with…
I am a dystonia support group leader. One of the members has Blepharospasm and cervical dystonia. He has the anti-bodies for Type A Botox and must use Myobloc. The Myobloc has such side affects that he has elected to use it just for his Blepharospas…
More about me (my health interests and reasons for joining WEGO Health)
I was diagnosed wtih Cervical Dystonia in 2002. My twin sister was diagnosed in 1998. My dystonia has progressed to various parts of my body. It was exacerbated by an automobile accident that resulted in a torn rotator cuff in 200. After the surgery, dystonia progress into the deltoids in my right arm making it impossible for me to work. The pain was excruciating forcing me to quit working in January of 2008. I am the founder of the Northern Colordo Dystonia Support Group in Colorado.