Cindyrella's Groups
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Diet, Weight Loss & Nu...
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Women's Health
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Dystonia Neuro Movemen...
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Cindyrella's Discussions
Going cold turkey
Replied Aug. 25, 2008
Re: Rolfing....anyone experience this???
Replied Aug. 21, 2008
Cindyrella's Page
Latest Activity
I too get a flu shot each year. I understand that the vaccine only last 6 months, which is why some medical professionals recommend to wait til Oct 1st, so as to be protected during most of the flu season. I also understand that the flu virus morp...
Have you read the article from roger hartmanns opinion of desiree jennings? www.wcnc.com/.../w. I want you to know I disagree w/ you completley. By the way when did you finish your degree as a movement disorder neurologist? I have dystonia and I d...
I know some people think that the fact Ms Jennings can walk backwards and even run but not move forwards freely is strange. But I have found these links. As you will see it isn't that uncommon:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1279701/...
It would be interesting if something like this person getting Dystonia from a flu shot has something to do with all of us getting Dystonia from some illness associated with the flu strain at some point in our lives. It would not apply to those who...
I think all of us are angry.. at the word of psychogenic.. I know I was for 5 years before I self diagnosed myself..they all told me it was in my head... URGHH>>>
It's good to vent... I do wish we could tap into her but not a single person can get...
Sorry Beka I thought you felt it seemed phsycogenic. I so hate that word! The whole thing shes going through makes me so angry. Guess I was venting aimed at the wrong person. Please forgive me.
hopeful
Here are multiple links - post your thoughts and explanations about dystonia directly on these sites :
http://www.myfoxdc.com/dpp/health/102109_desiree_jennings_dystonia_explained
http://scienceblogs.com/insolence/2009/11/dystonia_from_a_flu_vac...
Please clarify this - How are you beka our dystonia foundation being any less irresponsible in your statements...I AM not the dystonia foundation...I happen to work in an ICU setting as a ICU rn and have already seen the toll the H1N1 flu has take...
Profile Information
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- More about me (my health interests and reasons for joining WEGO Health)
- Here to find more information on Focal Dystonia
Comment Wall (3 comments)
- At 10:20pm on August 24, 2008,
frekelz1 said… - hi, i have generalized dystonia, have had it since i was 7. just reading about you becuase you were talking with "stan". i'm 45 and live in wa.state with my husband and 14 yr. old son. email me if you want to chat. suzanne
- At 5:55pm on August 24, 2008,
Lene said… - Thanks for your friendship. I tried to hook on to your myspace, but it told me I did not have the right name lol. I am looking forward to getting to know you. Perhaps we can get hooked up with myspace alittle easier. Lene
- At 9:19pm on July 28, 2008,
Robin Wood said… - I am so glad you made it here :) If you need any help let me know, all of us from the MS Group have had a getting use to period.
Lots of love to you my friend
Robin
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