Donna's Discussions
Losing Weight Safely
Replied Nov 23
New Neurologist
Replied Nov 10
New Neurologist
2 Replies
Started this discussion. Last reply by Donna Nov 10.
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What kind of exercise does everyone do that does not trigger spasms? I love to dance but both feet get so knotted up, it's ridiculous. I find that lifting weights triggers tremendous spasms in my arms so I am afraid of that.
I really want to get t...
Hi Ellen,
Thanks for the reply. No he is a neurologist at one of the top hospitals in New Jersey. I just spent a week there because of an uncontrolled panic attack. The company that I was working for has revoked my unemployment benefits and now I...
Oh no, Donna. I'm so sorry! Was this guy a movement disorder specialist??
Well gang,
I had my first appointment with a new neurologist yesterday and it was unimaginable!
This man looked at me, shook both arms, told me to hang on to the side of the table and hold on hard. Naturally the tremors stopped because for me if...
MY work... Ha- ha...LOL at work.. with the clocks changing tonight..
beka
Donna, I wish I could say that you are alone. I am dealing currently with a similar situation. My neuro moved and is now concentrating on running an epilepsy center a few hours away. I don't have epilepsy. :( I miss him so much. The neuro he refer...
Hi Whaler! Thanks for the response. I was really afraid that I had offended everyone and never meant to. The reason my neuro is retiring is because he knows that we are headed for socialized medicine and that is something that he cannot face. I fe...
Profile Information
- Location
- 07035
- More about me (my health interests and reasons for joining WEGO Health)
- I have had generalized dystonia in both arms, shoulders and hands since 1991. I was first diagnosed with Parkinson's since the doctors that I went to had never seen dystonia before. I even had the head of the Department of Neurology at Columbia Medical Center in NYC treat me for physiatric problems because she thought I was making the tremors up to get out of living my life.
I am now going to just my family doctor who has me on an assortment of medications that seemed to have helped.
Life for me though is very lonely since I can't seem to find people to pal around with. I think they are afraid of me and don't know what to do with my tremors.
But I get through the day at my job with not many problems. The tremors really come out when I am very tired or upset about something.
This is just something that I have learned to deal with. I just wish that I had people to talk to that would treat me like an equal.
treat me for
Donna's Blog
Problems paying medical bills
Hi everyone!
I was recently laid off from my job because of my problems with dystonia and now the bills are really beginning to mount.
Does anyone know if there are any government plans that help out people like me? I have no insurance, can't afford it, and am really beginning to get into trouble.
I am over $25,000 in debt already between hospital and prescriptions.
If anyone knows of any place where I or anyone else in this position can get help, I would really appreciate the info.
I am no… Continue
I was recently laid off from my job because of my problems with dystonia and now the bills are really beginning to mount.
Does anyone know if there are any government plans that help out people like me? I have no insurance, can't afford it, and am really beginning to get into trouble.
I am over $25,000 in debt already between hospital and prescriptions.
If anyone knows of any place where I or anyone else in this position can get help, I would really appreciate the info.
I am no… Continue
Posted on August 3, 2009 at 8:52pm —
How do you explain dytonia to someone you are dating?
I have been dating a super guy who happens to be a firefighter for nearly a year now. He recently lost his job as a desk top support person and has been miserable trying to find another position. In this economy, it is next to impossible.
I have been very supportive of him in his job search and know that he will eventually find something that suits him.
Now for my problem. How do I tell him I have dystonia without him running out the door screaming?!
He has noticed the bad limp that I have an… Continue
I have been very supportive of him in his job search and know that he will eventually find something that suits him.
Now for my problem. How do I tell him I have dystonia without him running out the door screaming?!
He has noticed the bad limp that I have an… Continue
Posted on March 25, 2009 at 9:15pm —
Comment Wall (2 comments)
- At 6:36pm on November 10, 2009,
Lene said…
- Hi Donna,
I read your post about the neurologist and how he treated you.OMG what is this world coming too. Please try and actively search for a movement specialist that can help you.
The dystonia foundation in Chicago might have some answers for you. Please call them.
They have the names of doctors etc in your area who will understand you. Please try and call them. I was going out of my mind and I called them and they smooth things out for me..Let me know how you are doing...I hear that some doctors are closing shop and going to the Islands because of the White House etc. I am scared myself. If you need me to get the number for you I will. I have some literature around here with their name on it and phone number.Lene
- At 10:16pm on June 22, 2008,
Donna said…
- I am looking to communicate with people in Northern New Jersey who suffer from generalized dystonia in any part of their bodies. I would like to know how you handle the tremors and explain to people what you have and how medications have helped you.
I would like to hear from anyone regarding this disease.
Thanks
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