Ernie's Page
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Maybe we could get together sometime and do a little brainstorming. I would hat to put out the idea too soon without a game plan of some sort at least. Meanwhile, if anyone else would like to participate, I'm sure that we could find a way to get e...
There is strength in numbers. It's hardest to go it alone and expect to make any sort of impact. What I would love to see is a group of "dystoniacs" (my made-up word for dystonia patients) do something along the lines of a walk around a capital bu...
Michael J. Fox said it best when he said something to the effect of "vanity is the first thing to go". A HUGE thank you to Beka for putting herself out there and working for awareness. I know that many people in our support group don't like to go ...
At a recent support group meeting of ours I mentioned to the Allergan rep that they should subsidize Botox for medical purposes, paid for by the rich and vain. The biggest problem that I have with Allergan is that they seem to run a boatload of co...
Hi Ellen,
How far are going now to see your neuro? I know that it is difficult for you at times to travel any distance but we do have great one that we see in Iowa. If you'd like more info on him, please contact me at my regular email and maybe w...
Comment Wall (1 comment)
- At 1:44am on July 10, 2008,
GGMel said… - Hi Ernie: I am a new member, but know some of the members who joined WEGO and I'm quite impressed. I feel this will be a website that will be beneficial and helpful to many. The beginning onset of Dystonia can be very frightening to many people, and having a place to meet others with the same disorder can be so helpful. Just knowing that others care and know where you, yourself, are coming from, can benefit your entire outlook on your present and future life.
Profile Information
- Location
- 50003
- More about me (my health interests and reasons for joining WEGO Health)
- I am the support partner for my lovely wife who has dystonia. Together we are the support group leaders for dystonias and we work with all organizations to further education and awareness.
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