Jeanie's Page
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About a year ago,a neurolgist at a clinic put me on Artane for my Generalizes Dystonia.Increasing dose slowly untill i was supposed to find some relief.Inever found it,with the exception when i slept..which was almost all the time.When awake i los...
Grace,sorry to hear about your mom.You're right about the dreaded movements,you're probably headed for some tough ones.Any extra,even anticipated stress can hurt ..hang in there. Take Care,Jeanie
I believe in a 'Higher Power',I believe in prayer & I have faith in 'Higher Power'..but I also believe in inner faith,believing in myself. I am not christian,therefore I don't believe in the Bible nor do i believe in a 'God'. I do believe there is...
I have been disabled since 18 mos. with Juvanile Rhumitoid Arthritis, then come along Generalized Dystonia..only o be dx'd several yeard ago.For all of my life i've had lots of acquainences, but a handfull of true friends.I greet everyone openly,e...
Hello Grace,can you tell me how I can get a copy of "Caught up in a Crip". I would love to have a poster. I woundn't make copies without your permission. Glad to hear your're feeling better...your graphics are truely theraputic,even for me.
Take C...
Ofcourse you should go. However, be prepared with a back-up plan. It a way of life for me. Being prepared is very conforting to me. I take ready to activate heat packs,an ice packs if I need it,a small music device with earbuds to listen to relaxi...
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
I was diagnosed with Juvenile Rhumitoid Arthritis at 18 mos. of age. At age 3 i was on crutches, at age 13 i went into a wheelchair.That was 43 yrs. ago.I was diagnosed with Genalized Dystonia in June 2007.
I had never heard of Dystonia. After considerable research,I realize i've have had dystonia-like activity since early childhood. The Orthopedic Doctors considered the dystonia-like activty to J.R.A.
I had never heard of Dystonia. After considerable research,I realize i've have had dystonia-like activity since early childhood. The Orthopedic Doctors considered the dystonia-like activty to J.R.A.
Comment Wall (4 comments)
- At 6:04pm on July 28, 2009,
Lene said… - Thank you Jeanie...Hope you are doing well. Lene
- At 5:14pm on May 18, 2009,
TWISTEDJAM said…
- Hi there Jeanie !
I hope you're feeling well today !
Feel free to copy my pic ... " Caught In A Grip" !
Just right click on that pic and click on where it says save picture as ...
then when a box shows up click save.
Hope you have a printer ... unfortunately I don't @ the present time as I send my pics to my sister and she prints them for me.
I'm so glad that my pics give you a sense of hope and help as it does me as well ! Just putting my ideas to paper and having the finished product is such a therapeutic release for me !
Take good care !
Your friend ... Grace
- At 11:26am on April 19, 2009,
TWISTEDJAM said…
- Hey there Jeanie !
You're on the "twisted" tree ... look up !
Thank you for your wonderful comments !
At times words can't really capture the impact of Dystonia ...
I try my best to express this illness in pics with an added touch !
Hope you're feeling well today my friend !
Grace
- At 1:38am on April 19, 2009,
TWISTEDJAM said…
- Hi there Jeanie !
Thanks for being a friend !
Feel free to knock any time !
With your permission ... I would like to place your pic on the "twisted" tree on my blog ... as one of the many Dystonia warriors !
Hope you are well !
Take care !
Grace
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