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Jeannie
  • Pittsburgh, Pa
  • United States
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Jeannie replied to suej's discussion 'new drug......' in the group Dystonia Neuro Movement Disorder
I tryed Flexeril and it caused severe leg cramps especially at night. Also made me very sleepy and put me in the ozone. I like my two feet to be on the ground and be aware of what is going on around me. Chalked that one OFF real fast. Jeannie
November 12
Jeannie replied to Browneyes27's discussion 'Fever with Dystonia' in the group Dystonia Neuro Movement Disorder
Hi Browneyes27, What kind of surgery are you going to have? You should not have to take abuse from anyone. Is there someone else that you could stay with? Take Care, Jeannie
June 26
kamelia left a comment for Jeannie
June 26
Jeannie left a comment for kamelia
June 26
kamelia left a comment for Jeannie
June 25
Jeannie left a comment for kamelia
June 24
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June 24
Jeannie left a comment for kamelia
June 24
Jeannie replied to kamelia's discussion 'dystonia and DBS' in the group Dystonia Neuro Movement Disorder
Hi Kamelia, I had the DBS surgery done in 2003 and again in 2008. I can say that I am about 50 to 60% better. The hardest part is going through the programming. I still take klonopin, tylenol w/cod #4 and ibuprofen, but only in very small doses. ...
June 23
Jeannie replied to freida may's discussion 'ThE Wearing Off Of Sinemet' in the group Dystonia Neuro Movement Disorder
Hi Browneyes27, What type of surgery are you going to have. Jeannie
June 23
amanda left a comment for Jeannie
June 16
Jeannie replied to Bud's discussion 'Cure for Dystonia that noone talks about' in the group Dystonia Neuro Movement Disorder
Hi Bud: First of all I am new to this board and I just joined today after reading your story. I am from Pittsburgh, Pa and back in 1992 Dr. Jho did a surgery on me called nerve decompression. He was assisted by Dr. Janetta. At the time of my surge...
June 15
Jeannie joined Adrienne's group
Dystonia Neuro Movement Disorder
This group is moderated and hosted by Beka Serdans, RN, MS, NP, founder of Care4Dystonia.org.
June 15
Jeannie is now a member of WEGO Health
Welcome Them!
June 15

Profile Information

In the online health communities I participate in, I'm:
not really sure where I fit yet
More about me (my health interests and reasons for joining WEGO Health)
I have had Dystonia for 26 years. I also have had the DBS surgery.

Comment Wall (4 comments)

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At 4:06pm on June 26, 2009, kamelia said…
hello Jeannie
thank you so much for your guidance.
kamelia
At 3:59pm on June 25, 2009, kamelia said…
hello Jeannie
i sent you a message.
thanks
kamelia
At 4:56pm on June 24, 2009, kamelia said…
hello Jeannie
thank you so much for your comment.i don't know where i write my e-mail address for you.could you guide me please?
thank you so much Jeanie.
kamelia
At 12:58pm on June 16, 2009, amanda said…
Welcome to WEGO Health Jeannie! It's great to have you.

It's awesome that you've already joined the Dystonia group and started adding some of your insight. I'm sure you have so much to offer our community because of your extensive experience with Dystonia.

Have you taken the What Type of Health Activist Are You Quiz?

Feel free to add a blog post introducing yourself and sharing your favorite health topics. I like writing blogs about new health info I find. It's a great way to speak to the whole community.

If you have any questions please let me know! I look forward to seeing you around the community!
-Amanda
 
 
 

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