"A week to do everything I need (i.e. chores), should (i.e. errands), & want (i.e.shopping) to do. Let's see how much activism I can get in;)"
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JennyPettit
- 26, Female
- Havertown, PA
- United States
- Blog Posts (9)
- Discussions (7)
- Events
- Groups (9)
- Videos
JennyPettit's Groups
JennyPettit's Page
Latest Activity
JennyPettit posted a status"Activists/patients/sickies/caregivers-have idea need help, esp: web, legal, even marketing. Above all, ppl willing 2go public. Gonna B big!"
jdorfist is attending JennyPettit's event
Philadelphia Sjogren's Walkabout at Philadelphia Zoo
May 5, 2012 from 8:30am to 10am
The largest Sjogren's Syndrome Walkabout in the country! Join us for the 2012 Philadelphia Area Sjogren's Syndrome Walkabout, and get a FREE day at the zoo for you and your family! All walkers get free admission - regardless of funds raised. Of course, your donation is important too, in our work to improve the quality of life for Sjogren's patients everywhere! What is Sjogren's (pronounced "show-grins)?Sjogren's is the 2nd most common autoimmune disorder, affecting an estimated 4 MILLION…See More
JennyPettit posted an eventPhiladelphia Sjogren's Walkabout at Philadelphia Zoo
May 5, 2012 from 8:30am to 10am
The largest Sjogren's Syndrome Walkabout in the country! Join us for the 2012 Philadelphia Area Sjogren's Syndrome Walkabout, and get a FREE day at the zoo for you and your family! All walkers get free admission - regardless of funds raised. Of course, your donation is important too, in our work to improve the quality of life for Sjogren's patients everywhere! What is Sjogren's (pronounced "show-grins)?Sjogren's is the 2nd most common autoimmune disorder, affecting an estimated 4 MILLION…See More
JennyPettit commented on Adrienne's group Cancer"Hi - anyone have any experience or info on early signs of Ovarian cancer? I have some weird symptoms I just found out are considered possible early warning signs and I'm trying to determine how seriously to take that idea. Thanks."
JennyPettit left a comment for jdorfist"Hey Jon, I had a thought. I see you haven't gotten any responses yet to your disclosure question on the autism group - why don't you repost your question on some other groups (mental health, chronic illness, etc)? All these…"
JennyPettit posted a status"Meeting next week w/my IRL invisible illness panel dream team - Bee Meaks & jdorfist (go friend them!). Big ideas! But, CPA exam first:("
JennyPettit joined amanda's group
Health Technology
Share ideas, tips, and best practices about the newest health technologies with other Health Activists.See More
Profile Information
- In the online health communities I participate in, I'm:
- a Match Maker (Connecting people)
- The online health resource I contribute to most frequently is:
- http://www.myuiiblog.blogspot.com
- This site is:
- my blog
- Another place where I contribute is:
- http://groups.to/uii
- Which is:
- a community I manage/moderate, my non-profit
- It's:
- a community I contribute to
- You can also find me at:
- http://twitter.com/uii_jennyp
- This is:
- my twitter
- More about me (my health interests and reasons for joining WEGO Health)
- I have multiple chronic "invisible illnesses" including Sjogren's Syndrome, Dysautonomia, Localized Scleroderma, Osteoarthritis, Fibromyalgia, and Raynaud's. Having been diagnosed (relatively) young at 15, I found it more productive and emotionally healthy to approach my life with a goal of expanding awareness and improving resources for people with invisible illnesses. I'm also a big believer in knowledge-sharing, and that we each have so many unique pieces of information it only makes sense to share them. So, I created "UII - Understanding Invisible Illnesses", which currently exists as a group on Facebook and the reason for my personal blog. In the future, I plan to bring UII to life an established not-for-profit resource, in alliance with many disease-specific organizations.
JennyPettit's Blog
Stress Flares SUCK
Posted on November 20, 2010 at 8:52am 3 Comments 0 Likes
This has been a BAD week for me. I had just been telling my family I noticed I was feeling an unusually high amount of anger all week. Things have been VERY high-stess at work, peaking on Wednesday with my mini meltdown, and continuing at almost that level the rest of the week. Add to that I've been very frustrated with my husband for different reasons each day, and while our relationship is strong as ever and none of my frustrations with him were really that serious, I didn't need the added…
Continue 30 Things
Posted on August 26, 2010 at 10:49pm 0 Comments 0 Likes
I posted this on my personal blog and FB group, but realized I might as well repost here.
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Sjogren's Syndrome, Localized Scleroderma, Fibromyalgia, Dysautonomia, Osteoarthritis, Raynaud's Phenomenon.
2. I was diagnosed with it in the year: 2001 when I was 15
3. But I had symptoms since: 1988 when I was two
4. The biggest… Continue
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Sjogren's Syndrome, Localized Scleroderma, Fibromyalgia, Dysautonomia, Osteoarthritis, Raynaud's Phenomenon.
2. I was diagnosed with it in the year: 2001 when I was 15
3. But I had symptoms since: 1988 when I was two
4. The biggest… Continue
UII and SSF: Success!
Posted on July 21, 2010 at 12:00am 0 Comments 0 Likes
(I originally put this post on my blog on May 2, 2010, the day after the Philadelphia Area SSF Walkabout.)
I'd like to report that Team "UII" Can Spread Hope! made a great showing at the 6th Annual SSF Philadelphia Walkabout! Eight of the ten original walkers (we lost one to an inflexible work schedule and one to a foot injury) braved the near-100 degree heat index to support Sjogies everywhere:D Here's my favorite picture of our team:…
Dry Eye Solutions
Posted on July 20, 2010 at 11:58pm 3 Comments 0 Likes
My eyes have been getting worse (drier, more sensitive, blurrier, yada yada yada...I'm sure staring at a computer screen for 16 hours a day and doing multi-hour long drives in bright morning sun and middle-of-the night darkness have NOTHING to do with it, of course). So, I've been doing research. I appologize for the down and dirty style of this post but I should really force myself to sleep soon.
1. Fish Oil - So I started taking fish oil for the Omega 3's, which…
Comment Wall (12 comments)
- At 11:17pm on July 17, 2011,
Ellen S said… - Jennypettit, most Migraine groups have forum areas that discuss other headache disorders. Trauma can cause different types of headach including Migraine. Migraine.com might be a good place tonstart as we have many physicians working with us. :)
- At 11:19pm on February 24, 2011,
Alicia C. Staley said… - Hi Jenny,
I am trying to find some more info on the autoimmune ovarian case. Do you know anything else about this? Was it a genetic diagnosis or is it a newly diagnosed condition for your friend? I'll keep looking. Good luck - Alicia
- At 2:07pm on February 24, 2011,
Amy K said… Hi Jenny,
I am so looking forward to hearing about how the panel went! I am sure it was great, but I want details. =)
Hoping you are feeling well these days, too. I wanted to take a moment and welcome you to the Women's Health group. I know you have so many wonderful things to add to the groups, I love seeing you participating!
I look forward to catching up with you soon,
Amy
- At 11:27am on February 19, 2011,
Bee Meaks said… - Thanks for catching that! Your wonderful :)
- At 10:35am on January 19, 2011,
REDE POSITIVO said…
- At 12:15am on November 28, 2010, Amy K said…
- Hi Jenny,
I wanted to let you know that I wrote up a post here called, "Discussing the Chicken and the Egg" about the discussion you started on Una Vita Bella. I thought our members here could benefit from the topic as well. I hope you will check it out and feel free to comment.
Happy Weekend,
Amy
- At 10:32am on August 4, 2010,
amanda said… - Hi Jenny! I just wanted to say hello and that it was great to have you join us for the Chronic Illness & Pregnancy webinar. People asked such great questions and I have a feeling you will have some awesome comments to add to the blog post I just wrote about the webinar. I did my best to sum up the whole hour of info into 10 take-aways, but I'm sure there was more I should've added. :) I'd love to have your thoughts on the post/the webinar/the topic in general!
Thanks!
Be well,
Amanda
- At 2:33pm on August 2, 2010, Alicia C. Staley said…
- Hi there! Welcome to WEGO Health. I'm a big fan of Twitter. I really think adding an account on Twitter will help you in many ways. First, it will help you connect with other people that share similar backgrounds, including "invisible illnesses." Second, Twitter will definitely help you spread the word about any work you're doing. I've been on Twitter for over two years. Twitter has helped me connect with other cancer survivors and make valuable connections in the health care community. If you ever want to chat more about Twitter, please feel free to contact me. Take care! Alicia
- At 12:48pm on August 1, 2010, Amy K said…
- Hello Jenny,
I definitely think Twitter will work for you in the way you are wanting to use it. As a health activist, I have the same goals in mind and that is exactly what it does for me! I am able to share the messages of health regarding mental health issues, suicide prevention, chronic illness, fibromyalgia, women's health, etc with people I would never have had the opportunity to meet in real life. Because of Twitter, my reach is far greater than I ever imagined AND I have learned more from others than I ever could have imagined! The connections and relationships are a wonderful added bonus, but also a key part of "success" on Twitter.
My work with mental health issues is a great example, for I have established relationships with people all over the country and all over the world, all because of Twitter! It has been an amazing and wonderful experience and I have no doubt that it will be a great source of networking for you if you decide to pursue it!
If you have any additional questions, feel free to ask, otherwise, I fully recommend just diving in! You won't regret it! And let me know if/when you do, so I can make sure to follow you and help you out a bit.
Additionally, that is very exciting news about your plans to expand your family! I am thrilled for you. The timing really is perfect for the webinar. =)
Talk more soon.
Amy K
- At 1:31am on July 31, 2010, Amy K said…
- Hi Jenny!
I want to welcome you to the Twitter for Health Activism group! I saw that you said you don't actually have a Twitter account, so I think it's great that you are curious and interested in everyone's opinion. I left you a comment within the group, but if you would like to discuss the topic more I would be more than happy to! Please feel free to message me through WEGO Health, comment on my page, however you would like to track me down... I'm around and would love to connect with you more.
Hoping you are doing well! Sending wellness wishes!
Amy K
Looking forward to the August 2nd Webinar, I see you've signed up for it too! =)
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