I posted this on another dystonia BB:
The simple fact remains that doctors who have examined her have determined she has dystonia, probably acquired as a result of the vaccine. The doctors who have NOT examined her say it's "psychogenic"...it's a...
Hi Monica,
The Burke-Fan-Marsden Rating Scale is not a test so much as a rating scale to help the clinician in his/her diagnosis...it's basically a checklist of symptoms, location, duration, severity, etc. It was developed to help the clinician m...
Yep, unfortunately, I do know what your husband is experiencing firsthand. I was diagnosed with Tardive Dystonia (drug-induced) in August of 1999. Fortunate for me, I live in NE Ohio which is home to the Cleveland Clinic, believe it or not, one of...
Mind if I rephrase your question to get more information from respondents?
"Has anyone had Klonopin or meds in the same family like Valium made their Dystonia symptoms worse?"
"If so, how were you titrated off the meds and did you suffer withdra...
Hi folks,
I am really curious to know if anyone has seen IMPROVEMENT in their dystonic symptoms after DISCONTINUING Klonopin (clonazepam) or any other benzopiazepine.
I'm aware that the symptoms of withdrawal will usually exacerbate the dystonia...
Hi Joe,
I just noticed that you live in NE Ohio....I live about 2 hrs southwest of Cleveland. I too go to the Cleveland Clinic. I just wanted to say hello to a fellow Buckeye!! Take care... Trudy