WEGO Health

Joe
  • United States
Share 
  • Blog Posts
  • Discussions
  • Events
  • Groups (1)
  • Videos

Joe's Friends

Joe's Groups

 

Joe's Page

Latest Activity

I posted this on another dystonia BB: The simple fact remains that doctors who have examined her have determined she has dystonia, probably acquired as a result of the vaccine. The doctors who have NOT examined her say it's "psychogenic"...it's a...
November 4
Hi Monica, The Burke-Fan-Marsden Rating Scale is not a test so much as a rating scale to help the clinician in his/her diagnosis...it's basically a checklist of symptoms, location, duration, severity, etc. It was developed to help the clinician m...
November 2
Trudy and Joe are now friends
November 1
Joe left a comment for Trudy
November 1
Trudy left a comment for Joe
October 31
Yep, unfortunately, I do know what your husband is experiencing firsthand. I was diagnosed with Tardive Dystonia (drug-induced) in August of 1999. Fortunate for me, I live in NE Ohio which is home to the Cleveland Clinic, believe it or not, one of...
October 31
Mind if I rephrase your question to get more information from respondents? "Has anyone had Klonopin or meds in the same family like Valium made their Dystonia symptoms worse?" "If so, how were you titrated off the meds and did you suffer withdra...
October 29
Joe added a discussion to the group Dystonia Neuro Movement Disorder
Hi folks, I am really curious to know if anyone has seen IMPROVEMENT in their dystonic symptoms after DISCONTINUING Klonopin (clonazepam) or any other benzopiazepine. I'm aware that the symptoms of withdrawal will usually exacerbate the dystonia...
October 29

Profile Information

Location
44221
More about me (my health interests and reasons for joining WEGO Health)
I have Cervical and Oromandibular Dystonia. Also have dystonic right arm tremor.

Comment Wall (1 comment)

You need to be a member of WEGO Health to add comments!

Join this social network

At 11:13am on October 31, 2009, Trudy said…
Hi Joe,
I just noticed that you live in NE Ohio....I live about 2 hrs southwest of Cleveland. I too go to the Cleveland Clinic. I just wanted to say hello to a fellow Buckeye!! Take care... Trudy
 
 
 

© 2009   Created by Marie

Badges  |  Report an Issue  |  Privacy  |  Terms of Service