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Julia commented on Julia's blog post Welcome to the Sjogren's Syndrome Club, Venus..."Aw....shucks, Ellen. Thanks. You're pretty fabulous, yourself!"
Ellen S commented on Julia's blog post Welcome to the Sjogren's Syndrome Club, Venus..."You are so fabulous girl. Once again you hit the proverbial nail on the head. Now if we could just get the correct info out there!"
Ellen S commented on Julia's blog post And I Thought That The Awareness Campaign Was Going So Well....Silly Me"Geeze, I really don't even know what to say here. Such disappointing coverage makes no sense to me at all. Articles like these make it necessary for us to work just that much harder to educate people to the systemic symptoms of this…"
Nancy commented on Julia's blog post And I Thought That The Awareness Campaign Was Going So Well....Silly Me"Amen. Thank you for your vigilance to Sjs. I told someone it was a systemic issue, and they argued the point with me.....oh well. Education, education and more education. Kind of like an endless battle.....
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Julia posted a blog postHow Annoying? Let Me Count The Ways.....
Guys. Confession time yet again here in Julia World.After our weekend visit for Sarah's graduation, I began downloading and editing my photos, and as I counted the number of pics that I took during just three short days.......um. I realized that I need to add one more personal attribute to my Things That Drive Others Crazy About Julia list.When I pick up my camera, I become as obsessed with taking pictures as my friend Bev's border collie does when he sees his favorite frisbee.Click click click…See More
amanda commented on Julia's blog post A Conversation About Chronic Pain and Health Activism"Hey Julia! Great post - I had so much fun when we did this webinar! Here's the direct link: http://wegowebinars.wegohealth.com/health-activist-perspectives/continuing-health-activism-with-chronic-pain/"
Julia posted a blog postThe SWACs Are At It Again
Goldie - WITHOUT my swimming suit inside. I've commented before about how much I enjoy the spirit and spunk of the senior water aerobics ladies over at the community center. Yep - The gang of amply endowed gals that mooned me on my first visit to the swimming pool locker room, God love 'em.They've endeared themselves to me…See More
mo commented on Julia's blog post Autoimmune Bling"Julia, I wear a medic bracelet and have for ten years. I have Addison's Disease and if I end up in the ER alone with no family I would be in trouble. I have come across more than a few doctors that were unsure how to treat me…"
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- The online health resource I contribute to most frequently is:
- http://reasonablywell-julia.blogspot.com
- This site is:
- my blog
- Another place where I contribute is:
- http://sjogrensworld.org
- Which is:
- a community I contribute to
- I’m also on:
- http://wellsphere.com
- It's:
- a community I contribute to
- More about me (my health interests and reasons for joining WEGO Health)
- I am a fifty-something woman who was diagnosed with Sjogren's Syndrome seven years ago. Autoimmune disease has been an expensive experience for me: it has cost me my career as an RN, several of my hobbies, and a few of my friends. It has, however, provided an enormous learning opportunity for me and my family and friends. I have been able to focus my medical knowledge and interest into learning more about Sjogren's Syndrome and autoimmune diseases in general. In writing my blog, Reasonably Well, I find the contact with other Sjoggies very rewarding, especially when I can share some of my experiences with this disease which may be helpful to others.
Julia's Blog
Welcome to the Sjogren's Syndrome Club, Venus...
Posted on September 1, 2011 at 5:03pm 2 Comments 0 Likes
And I Thought That The Awareness Campaign Was Going So Well....Silly Me
Posted on June 21, 2011 at 3:47am 2 Comments 0 Likes
How Annoying? Let Me Count The Ways.....
Posted on June 15, 2011 at 2:03pm 0 Comments 1 Like
Guys. Confession time yet again here in Julia World.
After our weekend visit for Sarah's graduation, I began downloading and editing my photos, and as I counted the number of pics that I took during just three short days.......um. I realized that I need to add one more personal attribute to my Things That Drive Others Crazy About Julia list.
When I pick up my camera, I become as obsessed with taking pictures as my friend Bev's border collie does when he sees his…
The SWACs Are At It Again
Posted on May 20, 2011 at 12:32am 0 Comments 1 Like
Goldie - WITHOUT my swimming suit inside.
I've commented before about how much I enjoy the spirit and spunk of the senior water aerobics ladies over at the community center. Yep - The gang of amply endowed gals that mooned me on my…
ContinueComment Wall (3 comments)
- At 4:44pm on October 7, 2010,
Refuah said… - Hello,I am Looking for a few Oregon Neighbors...toJoin me at oregonshout.com for health and healing articles:, .I also have a group there--Refuah = health and healing...
I see your here at wegohealth, and thought to ask if you might add value to OregonShout as well..--- Thanks Terry
- At 7:58pm on July 21, 2010, Ellen S said…
- Yay - So glad to read your intro!! I really have enjoyed your blog BTW - great job!
- At 1:17pm on July 12, 2010, Ellen S said…
- Hello Julia!
Welcome to WEGO Health - we're so glad you found us!
I see your a SS patient too. I would love to invite you to join our Autoimmune Group where there are currently a few discussions re: Sjogren's, and several Sjogren's Health Activists networking together for education and awareness.
I too am a Sjogren's patient. Unfortunately I went a very long time before finally receiving a diagnosis. I'm learning what I can and spreading the word as much as I can too!
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