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Thank you all for the replies. Lori you and I sound like "two peas in a pod". :) I can't help but wonder why "it" has come back after about 6 years of being nearly nonexistant. I guess...just because it does. Let's just hope it doesn't get worse.
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Yes that is exactly how mine happened. In 1996 for about 18 months my neck was twisted to the right. I couldn't drive and received botox and took clonazepam. Since then I have been on an off clonzepam for several years. But just as you my neck is ...
Why do I always feel that I have to apologize for not having severe dystonia? I am one of the hundreds of thousands who have it, severe or otherwise. Aren't we all wanting a little support and a cure?
Everyone who is diagnosed with Dystonia does ...
Thanks you for the reply bentnotbroke.
I do count my blessings. Everyday. I've met many with different types of dystonia and certainly those who's dystonia is more severe than mine. I know beyond a shadow of a doubt, I am one of the lucky ones.
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How True !!
beka
count your blessings....
KATHY, i have generalized dystonia, mostly in my right upper leg and some in my left arm that just awoke afew days ago. I take Klonapine 1 1/2 pills per day and Sinemet 25/100 3 x day because they think mine is DRD. I was DX on Oct 31 2008 and i h...
Comment Wall (1 comment)
- At 3:18pm on April 17, 2009,
Joan Serratelli said… - I appreciate that!!!
Joan
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- Location
- 27519
- More about me (my health interests and reasons for joining WEGO Health)
- ST/CD onset in 2000. 1 year of BotoxA and 2 years of clonazepam. Seemingly in remission for about 6 years.
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