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"Jenny, I was impressed with Tamara's answer. That is exactly what I would have tried to say. I do some ignoring, some encouraging & some private messaging. And occasional blocking.
Only one suggestion that I can add. I have…"
"Lisa, I had a post brewing in my mind and your photo inspired me to let it fly - in a good way I hope. My post links back here. Your image is worth many words. Thanks."
"I love your post Ellen & I hope I get to meet you in person sometime this year!
I'll post our recent meetup photo if I can here. Looks like it might work. Yay WEGO!
"
"I agree with Jenny. And Ellen. :D
Good luck Thursday Jenny!
I live near Disney & I get to meet people who are coming thru Orlando if they give me a heads up. I am thrilled to do it both for interviews or to hug RA sisters - what we call…"
Janeen commented on Kelly Young's blog post Why I Chose to Disclose about Rheumatoid Arthritis"Thanks for sharing this post with us! I've learned so much from you, not only about RA but about also patient advocacy and I'm so much the better for all of your hard work. Thanks for all you do!"
Amy K commented on Kelly Young's blog post Why I Chose to Disclose about Rheumatoid Arthritis"Thank you for sharing your health disclosure thoughts and ideas. Your efforts make such a difference in the world! <3"
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- The online health resource I contribute to most frequently is:
- http://rawarrior.com
- This site is:
- my personal website
- Another place where I contribute is:
- http://www.twitter.com/rawarrior
- Which is:
- my twitter
- I’m also on:
- http://www.facebook.com/arthritiswarrior
- It's:
- a community I manage/moderate
- You can also find me at:
- http://exchanges.webmd.com/rheumatoid-arthritis-exchange
- This is:
- a community I contribute to
- More about me (my health interests and reasons for joining WEGO Health)
- Was invited by another health blogger to read and comment. :D
RA Info at a glance
Seven questions. Short answers. Spread awareness.
Kelly Young's Blog
Why I Chose to Disclose about Rheumatoid Arthritis
Posted on March 23, 2011 at 6:00am 2 Comments 6 Likes
There was not one day when I decided what I would disclose about my Rheumatoid Arthritis. I think most of my life and medical situation still do remain private, even though I am public about RA. It’s good to point out that we can be selective about what is public. That said, this is a…
January Blog Carnival: 3 Fortune Cookies
Posted on January 8, 2011 at 7:30pm 3 Comments 0 Likes
My Entry for December Blog Carnival: Top 10 of 2010!
Posted on December 30, 2010 at 4:30pm 8 Comments 0 Likes
Thanks to Marie for really making me think hard about what were important milestones in 2010. It is good exercise for the mind to prioritize and categorize events. Also, it’s very useful when planning for the future. I’m glad I did it and I hope it helps someone else.…
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Comment Wall (9 comments)
- At 7:07pm on February 24, 2011,
Fabulousandsick said… - Thanks Kelly, I am really excited to join the group. I am a great admire of your work and you really inspired me to not be afraid to share my story with my friends, family and the world.
- At 10:41am on November 3, 2010,
MeganM said… - Thanks Kelly! Its really easy! Under your photo on your page there is hyperlinked text for "my page" next to "manage". Once you click that it will bring you to a home page. Under the "appearance" headline choose "appearance" and that will bring you to yet another page from where you will be able to choose a theme. There's a lot of great ones I've yet to explore. On a side note, I've really been enjoying your blog posts. You're doing an amazing job and I look forward to reading more!
- At 11:26am on August 17, 2010,
Mike said… - Kelly:
Many commercial organizations in the field of health care will seek to position themselves and their staff by giving them titles like "Health Advocate" or "Director of Advocacy" or similar. These are not qualifications. They are just titles. I am not aware of any formal educational qualifications that would make someone a health advocate or a patient advocate. However, one could certainly get a masters in public health (MPH) with a focus on such topics.
- At 11:13am on August 7, 2010,
Anna Karenina said…
- At 10:01am on July 3, 2010,
Ellen S said… - I see Amy and Susan have met you as well. Any of the three of us can help you figure the site out. As for discussions, when you go to the Autoimmune group, there is a Discussion box. At the bottom it says Start Discussion. Hit the button and away you go! If you see a discussion you wish to comment on, there is a reply box below the text. Same with blog posts. To create a blog post that will show up on the group's main page, use the tag "autoimmune".
- At 11:27am on July 2, 2010, Amy K said…
- Thanks for the note Kelly!
If I can help you navigate around WEGO or if you have any questions please feel free to ask.
Hope you have a great weekend ahead!
Amy
- At 12:45am on July 2, 2010, Amy K said…
- Hi Kelly!
Welcome to the Twitter for Health Activism group. I hope you find it a great place to connect with others, to share resources and work together to make the most use out of Twitter as health activists.
I look forward to connecting with you here, I'm already following you on Twitter! =)
Please feel free to add to the discussions and introduce yourself in the group.
Wellness wishes,
Amy K (@Abeeliever)
- At 9:35pm on July 1, 2010, Ellen S said…
- Hi Kelly!
Thanks again for taking the time to comment on my blog post - Do you and your Rheumatologist disagree on the severity of your disease?
I so enjoy following you on Twitter and stepping in to read your blog when I can. When I think of my favorite Autoimmune Health Activists, you are one of my tops! Thank you so much for all that you do.
I see you have jumped right in and joined 3 of our communities. I hope you'll also consider joining our Autoimmune Diseases group too. We have several RA patients there, and I know you've been an active Health Activist so long you probably have a lot you can show us about successful advocacy and awareness. Here is the introduction thread. Feel free to include any links there so other HA's can easily find and read your work.
Cheers!
Ellen S
- At 11:44am on July 1, 2010,
Susan M. said… - Hi Kelly! Thanks for joining our community. We've added you as a Featured Health Activist on our home page (www.wegohealth.com) based on the recommendation of one of your fellow Health Activists! We hope you'll stop by to check it out and let everyone you've been featured.
Susan M.
Community Manager
© 2012 Created by Susan M..
