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Keri27
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At 11:40am on October 26, 2008, Robin Wood said…
Hi Keri, this is Lil' One from the myspace group. I am so happy to see that you've joined us here on WEGO as well. I have to agree with the others, your lil' guy is sooooo cute and what a smile.

If you have any questions about this site or need any help please do not hesitate to ask.

Robin
At 10:29pm on October 25, 2008, karen said…
hi keri..you and i have talked on myspace's dystonia groups page..i just saw that you had come over here when i saw your post on sleeping problems..

what a cutie pie your kasey is..and what a beautiful smile!!..you must be very proud of your little guy..i'll bet he loves his power chair and the freedom that it gives him..i know i love mine!! ;0)

give him a gentle hug for me ok..take care!!
karen
At 12:38pm on September 22, 2008, Keri27 said…
Thank you for the comment and no i haven't thought of that idea at all. i know that i have a hard time with him and the heat. His room has to be extra cool for him to sleep cause other wise he will wake up soaked from sweat. But that does make since i will have to try it. Thank you
At 8:51am on September 22, 2008, Thorns said…
Keri, what a lovely little guy you have, I was thinking about the sleeping problem and was wondering if you got him a heated mattress cover it would keep his muscle warm and maybe help them not go into spasms as much. If his not out of diaper's yet you could get a plastic cover to cover it so there wouldn't be a problem with it getting wet, just a thought. Blessings Thorns

Profile Information

Location
51555
More about me (my health interests and reasons for joining WEGO Health)
I'm a mother to a special little boy that is 2 years old he will be 3 in Nov. He was just recently diagnosed with dystonia in july and has also just received his first Power wheelchair. He is the youngest child that childrens hosptial in Omaha NE has ever put into a power chair. He is the strongest boy that i have ever meet, no matter what he is or has gone through he comes out of it with a smile on his face!!
 
 
 

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