Kimberly Nelson's Page
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Kimberly,
I very much understand the frustration with psychogenic and conversion disorder diagnoses, as I have been handed both of those myself, before being diagnosed with Generalized Dystonia and later having had DBS. One of our sons has episodes…
Thanks Beka. Yeah, I did let Greg do all the talking until the doctor seemed so casual with him. Then I said, here's what he does and what it looks like. My husband's been out of work a while so we literally don't have money for another doctor right…
Hi Kim - what about an MRI ? A scan ?? Can you pay out of pocket to see Dr. Schrock ?
Female docs tend to listen more before telling you it's all in your head...many patients come to terms with the idea of seeing a MDS by seeing those out if their i…
Well, I got my son to a neurologist the other day. We couldn't go to Dr. Schrock like we wanted to because our insurance wouldn't pay any at all. But maybe we're gonna have to work something out. The neuro we went to said he has stress-induced tremo…
How is Lexie doing ??
Beka
Use your mothers' intuition- gut instinct... Don't belive anything until you have proof and a believable and qualified physician who knows how to do a neuro exam !
beka
Joe,
Thanks tons. I really do appreciate the encouragement. You reminded me of something I should have remembered - that a psychogenic origin would be AFTER all else is ruled out. Not first. It just seems to easy to go yeah, that's stress. In fact,…
Thank you so much. I emailed Dr. Schrock and she emailed back. (How crazy is that?) She said she can see him and just get a referral which I got. So we'll start there. Thanks so much for your input and help. It's kinda hard to sort out stuff on the…
DR"S they made my daughter HATE that word, "psych" she was just shy of 13 when her first full dystonic episodes hit her and DR's went staight to "it is conversion disorder" and "she needs a psych eval" "she has a abnormal attchment to you" tehy had…
I am right there with you! My daughter was diagnosed 14 months ago with dystonia and I feel lost they have no idea the cause or how to treat it. Emotions are a factor but far from the only factor there are a few genetic markers they can look for and…
An MDS is a neurologist who has special training in muscle related neurological problems, the three most common being dystonia, Parkinson's, and essential tremor. Part of the diagnosis of these illnesses is just observing a patient and deciding whet…
Hi Kimberly,
I second the motion with regard to a second opinion from a neurologist QUALIFIED (a movement disorder specialist is just such a person) to render an accurate diagnosis as to what might be causing your son's uncontrolled movements. It n…
Thanks so much Kat. I looked up movement disorder specialist in utah but didn't find much listed that way. I'll keep looking but if someone has a referral, that would be awesome. An MDS is a subcategory of neurologist?
I think you're right about ho…
A family history of movement disorders, uncontrolled movements, stress aggravating those symptoms-even to the point that the illness appears to be psychiatric, etc... could certainly describe dystonia or another movement disorder. It is reasonable t…
Hi Thanks for responding. He hasn't been tested for ms. We're in Utah. He's in Ephraim Utah so he'd have to go to Provo or somewhere.
I don't know much family history since I was adopted, just that my birth mom and one of her other daughters has ms…
Hi Kim and welcome,
Has your son been tested for ms? I would try a movement specialist. If you let us know what state and city you are in, someone here may be able to direct you to a doc of higher regard.
I cant diagnose him but if he has jerking,…
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