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Lori
- Female
- Granville Summit, PA
- United States
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Lori's Page
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Hello All,
I have not been on for awhile, after my sprained ankle I ended up in the hospital with a blot clot. Now I am on that lovely drug coumadin. Scarey. Had a severe dystonia attack a few weeks ago. I was terribly depressed and I asked my dr...
I have had it affect my voice as long as I can remember. I start to really feel the stress when singing at church during worship service. I sing more bass now then alto. It flucates alot when I am upset also.
Hope you heal quickly.
Deanna
I think dystonia is caused by an electrolyte imbalance. there is more information on electrolytes here. I had vagal vassy for a long time and was told there was no cure until I balanced my electrolytes. I haven't had symptoms of it in 3 years.
Hi Lori,
So sorry about your sprained ankle.I am glad it is getting better.My voice will fluctuate at times, I am not a doctor or a nurse( but i did stay at a Holiday Inn). I have dystonia in my neck and sometimes the muscles get tighter around it...
Hello All,
I haven't been on for awhile. Fell and sprained my ankle, its getting better. Made an appointment with a Dr in Philly that Rogers Hartman gave me. I could only get in to see a nurse practicioner but I figure if I can get into their sys...
You never know when it is going to rear is ugly head. It comes and goes and has a mind of its own. I think we all need to let ourselves feel the sadness, sometime I try so hard to hide it that it hurts more emotionally and physically then if I wou...
Yes that is exactly how mine happened. In 1996 for about 18 months my neck was twisted to the right. I couldn't drive and received botox and took clonazepam. Since then I have been on an off clonzepam for several years. But just as you my neck is ...
My neck did the same thing a few years ago it started shaking then eventually turned the the right. I received botox treatment and withing 18 months my syptoms seemed to fade. I have been on an off klonopin for several years. Lately my neck will j...
This group is moderated and hosted by Beka Serdans, RN, MS, NP, founder of Care4Dystonia.org.
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- More about me (my health interests and reasons for joining WEGO Health)
- I had spasmatic torticollis in 1996 and received botox treatment. It seemed to go into remission until the past 6 months. Also I have also had trouble with my voice almost like when I try to speak not comes out but air. Lately my neck has been jerking violently to the right, when it does it hurts. I fear the torticollis is returning but not sure.
Lori's Blog
It is Scary sometimes
Hello All,
I have not been on for awhile, after my sprained ankle I ended up in the hospital with a blot clot. Now I am on that lovely drug coumadin. Scarey. Had a severe dystonia attack a few weeks ago. I was terribly depressed and I asked my dr for something as I was crying all the time. I had been on zoloft for awhile last year but I am scared that my dystonia will worsen on any antidressant. So anyway my dr gave me Celexa and I had taken 2 of them and had a bad attack of dystonia. I was afr… Continue
I have not been on for awhile, after my sprained ankle I ended up in the hospital with a blot clot. Now I am on that lovely drug coumadin. Scarey. Had a severe dystonia attack a few weeks ago. I was terribly depressed and I asked my dr for something as I was crying all the time. I had been on zoloft for awhile last year but I am scared that my dystonia will worsen on any antidressant. So anyway my dr gave me Celexa and I had taken 2 of them and had a bad attack of dystonia. I was afr… Continue
Posted on July 16, 2009 at 9:11pm —
Dystonia, Dr, balance, sprained ankle
Hello All,
I haven't been on for awhile. Fell and sprained my ankle, its getting better. Made an appointment with a Dr in Philly that Rogers Hartman gave me. I could only get in to see a nurse practicioner but I figure if I can get into their system then I can get into to see one of the doctors. I live in a rural area and I also made an appointment with my local neurologist can't get into see him until August. I am going to Philly in June. I know my dystonia is only mild but I also want them to… Continue
I haven't been on for awhile. Fell and sprained my ankle, its getting better. Made an appointment with a Dr in Philly that Rogers Hartman gave me. I could only get in to see a nurse practicioner but I figure if I can get into their system then I can get into to see one of the doctors. I live in a rural area and I also made an appointment with my local neurologist can't get into see him until August. I am going to Philly in June. I know my dystonia is only mild but I also want them to… Continue
Posted on May 29, 2009 at 9:00am — 3 Comments
Comment Wall (3 comments)
- At 8:22pm on April 27, 2009,
tortimomma said…
- Hi Lori, I am new to this site since last week. Lots of info & those who empathize with our pain. To me, no expert by any means, from my own experience it sounds like you may need to visit your neurologist. Since 1988 when my symptoms began I have seen many neuro's, taken many meds, Botox injections, physical therapy, lately steroid trigger point injections [probably not a good thing] but they do ease the pain somewhat, but not the tortuous spasms that twist & jerk my head from side to side uncontrollably. The pain is almost unbearable sometimes & I've often wondered just how far one's head can turn or twist without breaking the neck vertebrae. Botox never worked for me; I have antibodies. I tried from 1992 steadily until 1996, then periodically since then & as recent as 2007 without success only very sore, stiff & painful muscles from the EMG & injections themselves. I take Tramadol & SOMA now, which are probably not good for ST. I have taken so many meds that docs won't even try older ones because they say if they didn't work before they won't work now. I don't even have an active neuro now, say they can't help me & I've had all that can be done. So I see a Pain Management Specialist & he doesn't know much either. I wish there was a movement disorder spec around but I don't drive more than 10 to 15 miles from my home & have no one to drive me long distance for specialists...so I suffer thru. I've found that ice packs help more than anything. They seem to numb the area & alleviate pain. I invite you as friend. Hope we can share our experiences. We need all the encouragement that we can get :)
I hope you have an untwisted night.
tortimomma aka Karen
- At 5:04pm on April 27, 2009,
sisdailey said…
- Hi Loria: Welcome to wego health. To add a freind look under your photo on your page and you will see add a friend. It is very simple just follow the directions. Hope this helps, Sisdailey
- At 11:58pm on April 25, 2009,
beka said…
- You Fit.. Welcome and Share..or just listen to the rest of us blab until you are ready to join in on a conversation. Plenty of good reading.
Sounds like a does of Botox would do you a bit of good..
beka
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