Maureen's Page
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For me, the very worst part of my cervical dystonia for some reason is either driving or riding in a car. My parents and only my parents understand this concept. My ex-husband (whom I've been hanging out with out of fear that nobody else will want "…
I feel extremely frustrated and terribly alone living with cervical dystonia. It feels like nobody around me can possibly understand how much pain I'm in on a regular basis. I try to keep my spirits up but honestly I throw myself a pity party at lea…
I enjoyed the acupuncture experience while it was happening but the second I got into my car $75 poorer and driving, my neck acted up right away. I tried it three different times and she claimed to be trained in China specifically for spasmodic tort…
I've checked into that program as it looks great. But it certainly is expensive, even for the distance program. What worries me is they mention they will tell you where to get the additional supplies needed to do the program. Are those also expensiv…
I have suspected that the Effexor XR that I took briefly for around two months in January-February 2008 may have caused my cervical dystonia, which began mildly in late February 2008 by uncontrollable head turning to the right. Another possible culp…
This group is moderated and hosted by Beka Serdans, RN, MS, NP, founder of Care4Dystonia.org.
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- More about me (my health interests and reasons for joining WEGO Health)
- I have cervical dystonia and would like to talk with others who have this horrible condition.
Comment Wall (1 comment)
- At 7:47pm on August 13, 2009,
Lene said…
- I have cervical dystonia too. I certainly understand your agony. Take it a day at a time. Some days are bad, but some are good. I thank God for those good ones.
Lene
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