WEGO Health

Novel Patient
  • Female
  • Thousand Oaks, CA
  • United States
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Profile Information

In the online health communities I participate in, I'm:
an Engineer (Ensuring everyone gets what they need)
The online health resource I contribute to most frequently is:
http://novelpatient.com
This site is:
my blog, my personal website
Another place where I contribute is:
http://community.novelpatient.com
Which is:
a community I manage/moderate, a community I contribute to, my personal website
I’m also on:
http://twitter.com/novelpatient
It's:
my twitter
More about me (my health interests and reasons for joining WEGO Health)
My name is Lauren, and I am a 25 year old with an unusual collection of autoimmune diseases including arthritis, Autoimmune Pancreatitis, Autoimmune Hepatitis, and Sjogren’s Syndrome with neurological involvement. I’ve been learning to adapt to life in a wheelchair since my arthritis became to severe for me to stand. I am also an aspiring novelist who is working on three novels and an avid scrapbooker.

I also build social networks. I built Novel Patient Community (http://community.novelpatient.com) to provide patients with chronic illness a place to make friends, form groups, discuss issues, and most importantly express themselves in personalized blogs.

Latest Activity

November 13
Do you have an autoimmune disease? This is the group for you! Join to discuss your illness and ways we can work together to raise awareness!
November 8
Thanks for the welcome, Barbara. I'm pleased to be here. I look forward to 'meeting' others, learning and sharing in whatever way I am led to do. Rest Well and have a wonder-filled weekend!
November 6
Do you use Facebook to promote your health activists efforts? Join this group to connect with other health Facebookers, share tips and best practices, and learn how to use Facebook to your best advantage!
November 6
Do you blog about health or illness? Join this group and share your blog link! Discuss issues that arise as health bloggers. Don't have a blog yet? You can make a customizable blog on Novel Patient Community!
November 3
October 30
Do you use Facebook to promote your health activists efforts? Join this group to connect with other health Facebookers, share tips and best practices, and learn how to use Facebook to your best advantage!
October 30
Hello everyone. We have a blog and website that focuses on mental health and survivors (in this case-we're using the term "survivors" as those who are left behind after losing a loved one to suicide.) We're also on twitter @onetosix. Looking forwa...
October 30
Do you blog about health or illness? Join this group and share your blog link! Discuss issues that arise as health bloggers. Don't have a blog yet? You can make a customizable blog on Novel Patient Community!
October 30
Welcome A James.. Glad you are here with us
October 30
Hello All! I am new to Wego Health, although I am involved actively in two other health related ning groups. I have Systemic Lupus, moderate to severe osteoarthritis that is more and more looking like the Rheumatoid type, although the blood tests ...
October 30
Do you have an autoimmune disease? This is the group for you! Join to discuss your illness and ways we can work together to raise awareness!
October 30
Do you have an autoimmune disease? This is the group for you! Join to discuss your illness and ways we can work together to raise awareness!
October 27
Alyson joined Novel Patient's group
Do you blog about health or illness? Join this group and share your blog link! Discuss issues that arise as health bloggers. Don't have a blog yet? You can make a customizable blog on Novel Patient Community!
October 27
My personal blog, where I also speak about many issues like suicide prevention, mental health issues, fibromyalgia, and chronic pain is called Una Vita Bella, feel free to visit me there!
October 23
Hi everyone! I have tested positive for autoimmune disease but all we know so far is that I do not have lupus or HIV. Other than chronic fatigue and goiter I am not showing symptoms. I am still in the process of receiving diagnosis. I also have ...
October 23

Comment Wall (7 comments)

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At 10:11am on November 13, 2009, Barbara Engle said…
At 1:10am on September 19, 2009, TENA/DIAMOND said…
HI LAUREN;
WOW, YOU ARE SO YOUNG TO BE IN A W/C. I AM ALSO DISABLED AND IN ONE TOO. I DO MY BEST TO GET AROUND THE HOUSE WITH A WALKER AND HAVE TO USE THE CHAIR TO GO OUTSIDE.

I ALSO HAVE A LOT OF AUTOIMMUNE DISEASE AND NEUROLOGICAL PROBLEMS.

I AM LEARNING TO SCRAPBOOK AND DO MUCH TO KEEP MYSELF SANE!!

I BELONG TO MANY GROUPS ON THE NET AND ONE I DECIDED TO DO IS TO ALSO PUT TWO ON HERE FOR IT IS ABOUT WHAT I DO AND REALLY.. I AM NOT A BLOGGER. SO I THOUGH IT WAS AS GOOD, IF NOT BETTER.

I POST MUCH INFORMATION AND HOPE THAT IT HELPS OTHERS. DROP IN AND TAKE A LOOK SOME DAY.

GREAT HAVING YOU AS A FRIEND. I HOPE WE KEEP IN TOUCH!

YOURS DEARLY

TENA/DIAMOND
At 3:37pm on July 25, 2009, Ellen S said…
Hi Lauren, welcome to WEGO Health - we're so glad you are here! I'm just so sorry it's taken me so long to get to your page...

I see you've found your way thru the site and have already jumped in with both feet - fabulous! If you need anything, please be sure to let somebody know.

I see we have several things in common. I'm running a bit behind these last couple of weeks as a result, or I would have been here much sooner to welcome you. :) I did also try to join the novel group, but had some trouble. I'll try again later today and see if I can get thru it. Might have been related to our DSL being iffy the last week or two.

I see you've met Kristy. Angie is another absolutely amazing Health Activist you should meet. She has autoimmune issues with Lupus and is a very active Health Activist as well. Lisa Copen is another terrific Health Activist that is really out there working hard for patients.

Please let me know if there is ever anything I can do to help you out. That's why we're here!

Health Activists are like snowflakes - no two are alike, but look what they can do when they stick together!!
At 7:12pm on July 17, 2009, mothershaffer said…
Thanks for reaching out. Looking forward to chatting with you.
At 12:23am on July 16, 2009, Kristy Bassett said…
Hey you want to jump on novel chat? Just logged in, am about to get a cuppa so will be gone a few minutes, but if you log in, was about to have a break before doing some uni readings.
At 12:20am on July 16, 2009, Kristy Bassett said…
Yeah I have thought about combining it all, apparently I can add subdomains on my hosting, but not really sure how to go about getting my sites onto it.
At 12:11am on July 16, 2009, Kristy Bassett said…
Hello :)

Been a while hasn't it. How have you been since the treatment?

Yes I have been crazy busy setting up all the extra sites, it all does feel more complete now, hopefully will all be used which will make it worth it.

I have been on holidays (hence all the extra stuff I've been doing) but am back at uni now so will all have to slow down, good thing, I have alot of 'my sites' bookmarked now, craziness.
 
 
 

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