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Novel Patient
- Female
- Thousand Oaks, CA
- United States
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Novel Patient Blog
Visualizing Symptoms
Appearances can be deceiving with a chronic illness. Looking at a person you usually can’t even begin to see what they are going through. Sometimes even your doctor can’t see what’s right in front of them. Sometimes you have to spell it out for them. Especially when you have a lot of symptoms and medical [...]The Unexpected
Sometimes you expect one thing and get another... especially when living with multiple chronic illnesses. I finally saw the Sjogren's specialist at yesterday. He spent a good 40 minutes pouring over my records and taking notes on them. He listened to my insanely long list of symptoms.High Hopes
Tomorrow I am heading down out of town on a trip to see a Sjogren’s specialist. My appointment is on Monday. Since it is about 3 hours away we — my mom and I — will be spending two nights at my Grandma’s house which is in the area. I have high hopes that he will [...]Celebrate!
On Friday I turned 26 years old! And I really had something to celebrate! The night before I got a call from my doctor letting me know that the lab tests were a mistake and I don't have a blood disorder! I was so relieved I almost cried. So on Friday I was able to celebrate my birthday worry free!Taking a Stand
Sometimes in the face of adversity you just have to stand tall. My doctor work me up on Sunday morning to tell me that I may have a blood disorder - Polycythemia. Unless there's been a mistake either with the lab or the blood draw itself, I am making too many red blood cells and my iron is much too high. He was hesitant to tell me what might be causing it, but if the repeat test I got today still comes back high he wants me to go see a Hematologist. I looked it up myself and the possibilities of the causes are rather frightening... ranging from cancer to a terminal illness to kidney disease. Needless to say I've been feeling rather anxious about it.Novel Patient's Groups
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Health Facebooker
14 members
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Autoimune Diseases
22 members
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Asthma & Allergy
162 members
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Chronic Pain
64 members
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Health Bloggers
29 members
Novel Patient's Page
Profile Information
- In the online health communities I participate in, I'm:
- an Engineer (Ensuring everyone gets what they need)
- The online health resource I contribute to most frequently is:
- http://novelpatient.com
- This site is:
- my blog, my personal website
- Another place where I contribute is:
- http://community.novelpatient.com
- Which is:
- a community I manage/moderate, a community I contribute to, my personal website
- I’m also on:
- http://twitter.com/novelpatient
- It's:
- my twitter
- More about me (my health interests and reasons for joining WEGO Health)
- My name is Lauren, and I am a 25 year old with an unusual collection of autoimmune diseases including arthritis, Autoimmune Pancreatitis, Autoimmune Hepatitis, and Sjogren’s Syndrome with neurological involvement. I’ve been learning to adapt to life in a wheelchair since my arthritis became to severe for me to stand. I am also an aspiring novelist who is working on three novels and an avid scrapbooker.
I also build social networks. I built Novel Patient Community (http://community.novelpatient.com) to provide patients with chronic illness a place to make friends, form groups, discuss issues, and most importantly express themselves in personalized blogs.
Latest Activity
Do you have an autoimmune disease? This is the group for you! Join to discuss your illness and ways we can work together to raise awareness!
Thanks for the welcome, Barbara. I'm pleased to be here. I look forward to 'meeting' others, learning and sharing in whatever way I am led to do.
Rest Well and have a wonder-filled weekend!
Do you use Facebook to promote your health activists efforts? Join this group to connect with other health Facebookers, share tips and best practices, and learn how to use Facebook to your best advantage!
Do you blog about health or illness? Join this group and share your blog link! Discuss issues that arise as health bloggers.
Don't have a blog yet? You can make a customizable blog on Novel Patient Community!
Do you use Facebook to promote your health activists efforts? Join this group to connect with other health Facebookers, share tips and best practices, and learn how to use Facebook to your best advantage!
Hello everyone. We have a blog and website that focuses on mental health and survivors (in this case-we're using the term "survivors" as those who are left behind after losing a loved one to suicide.) We're also on twitter @onetosix. Looking forwa...
Do you blog about health or illness? Join this group and share your blog link! Discuss issues that arise as health bloggers.
Don't have a blog yet? You can make a customizable blog on Novel Patient Community!
Welcome A James.. Glad you are here with us
Hello All! I am new to Wego Health, although I am involved actively in two other health related ning groups. I have Systemic Lupus, moderate to severe osteoarthritis that is more and more looking like the Rheumatoid type, although the blood tests ...
Do you have an autoimmune disease? This is the group for you! Join to discuss your illness and ways we can work together to raise awareness!
Do you have an autoimmune disease? This is the group for you! Join to discuss your illness and ways we can work together to raise awareness!
Do you blog about health or illness? Join this group and share your blog link! Discuss issues that arise as health bloggers.
Don't have a blog yet? You can make a customizable blog on Novel Patient Community!
My personal blog, where I also speak about many issues like suicide prevention, mental health issues, fibromyalgia, and chronic pain is called Una Vita Bella, feel free to visit me there!
Hi everyone! I have tested positive for autoimmune disease but all we know so far is that I do not have lupus or HIV. Other than chronic fatigue and goiter I am not showing symptoms. I am still in the process of receiving diagnosis.
I also have ...
Comment Wall (7 comments)
- At 10:11am on November 13, 2009,
Barbara Engle said…
- At 1:10am on September 19, 2009,
TENA/DIAMOND said… - HI LAUREN;
WOW, YOU ARE SO YOUNG TO BE IN A W/C. I AM ALSO DISABLED AND IN ONE TOO. I DO MY BEST TO GET AROUND THE HOUSE WITH A WALKER AND HAVE TO USE THE CHAIR TO GO OUTSIDE.
I ALSO HAVE A LOT OF AUTOIMMUNE DISEASE AND NEUROLOGICAL PROBLEMS.
I AM LEARNING TO SCRAPBOOK AND DO MUCH TO KEEP MYSELF SANE!!
I BELONG TO MANY GROUPS ON THE NET AND ONE I DECIDED TO DO IS TO ALSO PUT TWO ON HERE FOR IT IS ABOUT WHAT I DO AND REALLY.. I AM NOT A BLOGGER. SO I THOUGH IT WAS AS GOOD, IF NOT BETTER.
I POST MUCH INFORMATION AND HOPE THAT IT HELPS OTHERS. DROP IN AND TAKE A LOOK SOME DAY.
GREAT HAVING YOU AS A FRIEND. I HOPE WE KEEP IN TOUCH!
YOURS DEARLY
TENA/DIAMOND
- At 3:37pm on July 25, 2009,
Ellen S said… - Hi Lauren, welcome to WEGO Health - we're so glad you are here! I'm just so sorry it's taken me so long to get to your page...
I see you've found your way thru the site and have already jumped in with both feet - fabulous! If you need anything, please be sure to let somebody know.
I see we have several things in common. I'm running a bit behind these last couple of weeks as a result, or I would have been here much sooner to welcome you. :) I did also try to join the novel group, but had some trouble. I'll try again later today and see if I can get thru it. Might have been related to our DSL being iffy the last week or two.
I see you've met Kristy. Angie is another absolutely amazing Health Activist you should meet. She has autoimmune issues with Lupus and is a very active Health Activist as well. Lisa Copen is another terrific Health Activist that is really out there working hard for patients.
Please let me know if there is ever anything I can do to help you out. That's why we're here!
Health Activists are like snowflakes - no two are alike, but look what they can do when they stick together!!
- At 7:12pm on July 17, 2009,
mothershaffer said… - Thanks for reaching out. Looking forward to chatting with you.
- At 12:23am on July 16, 2009,
Kristy Bassett said… - Hey you want to jump on novel chat? Just logged in, am about to get a cuppa so will be gone a few minutes, but if you log in, was about to have a break before doing some uni readings.
- At 12:20am on July 16, 2009,
Kristy Bassett said…
- Yeah I have thought about combining it all, apparently I can add subdomains on my hosting, but not really sure how to go about getting my sites onto it.
- At 12:11am on July 16, 2009,
Kristy Bassett said…
- Hello :)
Been a while hasn't it. How have you been since the treatment?
Yes I have been crazy busy setting up all the extra sites, it all does feel more complete now, hopefully will all be used which will make it worth it.
I have been on holidays (hence all the extra stuff I've been doing) but am back at uni now so will all have to slow down, good thing, I have alot of 'my sites' bookmarked now, craziness.
© 2009 Created by Marie
