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Paul Winter
  • Male
  • Hailsham, East Sussex
  • United Kingdom
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My 11-year old son has been diagnosed with Dystonia. His symptoms became apparent to me only a few months ago but he claims his symptoms have existed since 2nd grade (age 7), so I'm wondering if I should go back to see what vaccinations he receive...
November 6
I know some people think that the fact Ms Jennings can walk backwards and even run but not move forwards freely is strange. But I have found these links. As you will see it isn't that uncommon: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1279701/...
November 6
Hi Beka, I am still in limbo. I have asked to see a neuro-psychiatrist with the hope that she will at least be able to give an opinion. I had a relapse a few weeks ago and haven't fully recovered from it yet. The last month hasn't been easy eithe...
November 6
How are YOU doing Paul ?? Where do things stand for you ? beka
November 5
Thanks paul for your clarifications... I don't really understand DMRFs view though when celebs are lining up behind Ms. Jennings now. Videos about herstory are present in the second " Flu shot thread..." beka
November 5
Sorry, I have just realised the article was written by Robert E. Bartholomew NOT Steven Novella. sorry for the mistake. Robert E. Bartholomew is a member of the Wessley school and is one of those who has tried to say CFS is hysteria! Robert E. Bar...
November 3
Hi Lynann, Do you have other symptoms too. such as cognitive problems and fatigue? Has fibromyalgia or CFS been ruled out? Both of these can be triggered by vaccinations. Paul
November 3
Of course it might not have been the flu jab that has caused Ms Jennings problems. There may have been other factors such as picking up another virus alongside having the vaccination. But the idea that her problems are psychogenic is, to me, nonse...
November 3
Thanks for passing it on Beka, I spoke with a few neurologists and they concur with what I thought in how Dystonia presentations occur. I did not think it looked like Dystonia but then again, I am not a physician, just someone who has done at lot ...
November 2
The Dystonia Flu-Shot Case Published by Steven Novella under Neuroscience, Science and Medicine, Skepticism Comments: 1 Robert E. Bartholomew is a social scientist who specializes in mass delusions. He describes them here, in an article he wrote f...
November 2
I contacted her also. No response. :P
October 28
Hi toots, perhaps we can chat on the yahoo with our mics soon. I had you number, dang if I can find it. Sorry to hear you have fallen this yr. I have fallen twice in the same day. It really hurt my knees and legs and arms and pride..other than th...
October 27
Hi lene, I still can't make up my mind about having a flu shot. I'm really nervous about getting it as I don't want to chance my Dystonia getting worse. I'm already using a walker because of my many falls earlier this year. My MRI was ok accorrdin...
October 26
Hi Lynn, I know I appreciate you sharing your story and I am certain others will also. Its a shame that all this has happened to you because of the flu. Would you mind sharing further.......How old are you when this happened. How long ago was thi...
October 23
Hello. A seasonal flu shot changed my life. One week to the day of the flu shot I woke up and couldn't walk or use my arms. My whole body was in pain. Like inflammed with arthritis. My feet were on fire. My ankles were swollen. I went to the docto...
October 23
WTG Beka and all Nurses...Choice is what we are given at conception, why change things now! Lene
October 19

Profile Information

In the online health communities I participate in, I'm:
not really sure where I fit yet
The online health resource I contribute to most frequently is:
http://www.youtube.com/kaazoom
This site is:
my blog
More about me (my health interests and reasons for joining WEGO Health)
I have developed a movement disorder that may be dystonia. I have been given a psychogenic diagnosis but I am not convinced. I want to learn more about dystonia.

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At 12:01pm on September 11, 2009, Sheridragonfly said…
Paul, I have a friend in Birmingham , England with dystonia
His wife might be available to tell you who they have seen..
If you want to send me private your email, I can put you in
contact with both of them..
Sheri in the USA
 
 
 

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