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Alicia C. Staley
  • Female
  • Boston, MA
  • United States
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Alicia C. Staley added a discussion to the group Twitter for Health Activism
I'm working on a list of WEGO Health users on Twitter. If you're a WEGO Health community member and use twitter, please connect with me here on WEGO Health and on Twitter! Thanks. I look forward to connecting with all of you. Alicia Staley -- @st...
yesterday
That sounds like a great idea. I'll make sure to check here for help passing along links and tweets!
yesterday
Thanks! I will. Alicia
yesterday
@stales, we're following each other already, but for others to know I am @healthyjack ALSO, be sure to post this (and maybe the Twitter list) in WEGO Health's Twitter For Health Activism Group Best, Jack
yesterday
I take a multi-vitamin, calcium-magnesiums-vitamin D supplement, at least 1000 mg of Vitamin C and as much water as I can possible take each day. I know I should do more on the vitamin side. Did you have to work up to the 1000 mg of fish oil?
on Thursday
on Wednesday
Thanks = I will make sure we're connected!
on Tuesday
I'm on Twitter: @immunedude
on Tuesday

Profile Information

In the online health communities I participate in, I'm:
a Match Maker (Connecting people)
Another place where I contribute is:
http://www.awesomecancersurvivor.com/
Which is:
my blog
I’m also on:
http://www.twitter.com/stales
It's:
my twitter
You can also find me at:
http://www.thestaleyfoundation.org/
This is:
my non-profit
More about me (my health interests and reasons for joining WEGO Health)
three time cancer survivor. Hodgkin's Disease and Breast Cancer (2).

My Cancer By the Numbers

I'm an engineer by education, so sometimes I think it's easier to explain my cancer experience by the numbers:

I've had Hodgkin's disease once, Breast Cancer twice. I was a 20 year old college sophomore, fighting my way through cancer for the 1st time. To diagnose the Hodgkin's, I had every major organ in my abdominal region biopsied, a section of my hip removed, my spleen removed, and for good measure, I let the doctors take out my appendix too. To treat the Hodgkin’s, I had 18 weeks of radiation and 9 rounds of chemo therapy. My chemo regime had 4 drugs. I still have 21 little blue radiation tattoos used to mark the radiation field on my body. I lost all my hair and lost a ton of weight. It took close to 3 years to battle through the Hodgkin’s.

At the age of 33, I was diagnosed with breast cancer for the first time. I had one lumpectomy and 5 intense days of Mammosite Radiation. For two years, I dealt with horrific side effects from “the anticancer drug” Tamoxifen – dry eyes, night sweats, bone pain, weight gain, migraines, insomnia, fevers… Sometimes, the cure is worse than the disease. In November 2007, I was diagnosed with breast cancer for a second time and I opted for major surgery - a double mastectomy. I had my thyroid removed during that surgery too. In total, I've had 3 separate courses of radiation, 1 course of chemo, 8 major surgeries, and 1 bone marrow biopsy. Whew…

I'm walking proof that super glue and duct tape works wonders.
But in case you want to know... I can still hit a golf ball 250 yards on a good day... bad day, maybe 235.

Alicia C. Staley's Blog

Alicia C. Staley

Are we winning the War on Cancer?

As a cancer survivor, I'm surprised at the number of times people ask, "Are we winning the war on Cancer?"
Advances made in cancer research and treatments are making a difference, but I still think there's a long way to go. It's not a yes or no question and unfortunately most people immediately assume failure when the answer isn't a definitive "YES." I know we're making great strides in the war on cancer - I'm living proof.

In a recent report by US News & World Report, it seem… Continue

Posted on November 15, 2009 at 9:30pm — 1 Comment

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At 7:34pm on November 15, 2009, paindfoot said…
Hi glad to add you!
At 1:04pm on November 14, 2009, ColumbiaPhD said…
Thanks...
Almost three years since I had a Whipple procedure for pancreatic cancer, my latest oncologist report indicates that I am currently cancer free! Hopefully, that will continue to be the case.
At 3:49pm on November 13, 2009, Jim - medXcentral said…
Hey.. sorry for not replying to your comment earlier. Good to see you here. I'm doing well... just trying to keep up.
At 5:09pm on November 10, 2009, TWISTEDJAM said…
Thanks for knocking on my door !

I've read your page ... what a road you have walked on !
I'm trying to walk in my mom's shoes now ... trying to do the best that I can for her !
She was recently diagnosed with Pancreatic Cancer ( stage 4 ).
She's on her way to yet another bout with Chemo tomorrow ... 3 more to go ...
this has been the worst storm that my family and I have been going through !

You're a braveheart ! ... We're trying the best we can to be brave as well !

Thanks for being a friend

Grace
At 12:39pm on November 10, 2009, Jonnie said…
Thanks so much for the friend request! You are one heck of a survivor! I look forward to getting to know you better.

Jonnie
At 12:15pm on November 10, 2009, sisdailey said…
Hello Stales:
I welcome your friendship. I hope you are doing well. I am doing ok hanging in there by threads. See you around here on wego.
Sisdailely
At 12:16pm on November 6, 2009, Amy K said…
So happy to meet you! Thank you for the friend request and for joining the group Twitter for Health Activism. I look forward to getting to know you, connecting more here and on twitter!
At 5:15pm on September 14, 2009, Gradon Tripp said…
Hey Alicia!
At 5:42pm on January 28, 2009, Marie said…
Not yet, but that's a great idea! I'll try and pull one together this week and post it, then as people join they can add links to their Twitter pages as well.

While you're at it though, definitely check out @vrhinesmith (Vanessa, my fellow Community Manager) and @healthyjack (Jack, our CEO).
At 5:02pm on January 28, 2009, Marie said…
Definitely come visit! Never a dull moment in the WEGO Health office (or Downtown Crossing, for that matter)
 
 
 

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