-
TJD
- Pukwana, SD
- United States Minor Outlying Islands
- Share
- Blog Posts
- Discussions (1)
- Events
- Groups (1)
- Videos
TJD's Discussions
neurological chiropractor
Has anyone else gone to a neurological chiropractor? I have one in my area thank god and he seems to be making great progress with my symptoms that he calls dystonia. At least I sleep at night and ...
Started Sep 28
TJD's Page
Latest Activity
Has anybody else ever experienced care with a neurological chiropracter. I would really like to know. I am going to this type of chiro and seems to at least offer some relief. He states that he can keep the dystonia from getting worse and even rev...
I want to know for sure that what I have is dystonia. I want to believe that not every day will be pain related. I want to think that some day the ache will let up. I want to ride horse again. I want to be young in body like I am in mind.
Getting lots of help from a neurological chiropraceetor. Feeling better all the time. But when stressed or upset tremors come back is this normal. I can tell I'm moving can slow it down even stop them say on my arm but then my jaw quivers. Sometim...
Has anyone else gone to a neurological chiropractor? I have one in my area thank god and he seems to be making great progress with my symptoms that he calls dystonia. At least I sleep at night and he has relieved some of the tremors. I have not re...
Wow I must say this ones hard never thought about how everything effects my husband. He knew I had chronic back pain when we married. I think he though like I did that eventually I would need surgery and then it would get better. Last year I had s...
Awareness is not all about finding a cure. Isn't it also about getting accurate diagnosis and treatment. I am supposedly a 4th generation sufferer of dystonia and because I watched a Oprah episode and have a rare neurological chiro practer on my s...
Dystonia, lives with me, I do not live with it. I refuse to allow it to take over my life. It's tried a few times. I love to ride horses and it has interferred with this in a big way. I just didn't know what it was then. It has taken years of ridi...
My husband had adult onset diabetes and would get boils, sores, whatever. He became resistant to regular antibiotics and ended up hospitalized on IV for the infection. We then had a friend who gave us the answer, very simple and found in health fo...
Am I going about this right. My gen prac doc is a super nice and sweet guy he has stuck with me for over a year and done referrals for tests on anything and everything. There is no movement special neurologist in my area that I can find at all so ...
Sweetie - how are you doing?
Thinking out loud here.....
I really don't know much about this, but I do remember having a catheter after kidney surgery. I had one for my ureter into my kidney that went into my bladder, then another to the outside...
Hi-
I have read your post several times and will propose several questions to you, in order to help resolve the issue.
First, why do you have a suprapubic catheter ?
A Suprapubic Catheter is a urine drainage catheter which is inserted into the bl...
Anyone out there ever have a superpubic cath inserted and then be Neuroligically unstable since. Been to ER x3 exper. Dystonic Storms. Glad I'm still alive, but damaged and traumatized. Can't keep B/P down,pulse or temp. Keep getting slght headach...
Lord knows I've met some frogs in Dr's clothes. I'll search out some movement specialists even if it means returning to Mayo Clinic.
Thank you, I have never heard of a movement specialist before but I will be finding one.
Comment Wall (1 comment)
- At 6:21am on September 24, 2009,
Jenn said…
- hey:P
Athena Diagnostics does the testing. Here is a list of all the genetic dystonias they test for: http://www.athenadiagnostics.com/content/test-catalog/
(There are only 3) The other 17 genes are not available for testing.. yet.
I don't know if you actually need a diagnosis in order to have genetic testing.. Perhaps that's your insurance talking. If you want to pay $1000 or so out of pocket I know athena lets you self refer your testing...
The test is VERY easy. They draw a WHOLE BUNCH of blood and they send it to athena.. The complicated part is getting it paid for. I had testing done but could not afford to pay.. so I never found out the results.
I hope this helps some :P
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- More about me (my health interests and reasons for joining WEGO Health)
- I believe I have dystonia.
© 2009 Created by Marie
