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Tahoe
  • Female
  • Brattleboro, VT
  • United States
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Head 'pain'...not head ache

So, in other words you really did not have dystonia, but your neuro thought you did at first? Please see my post about th occipital nerve below. There can be hundreds of reasons for head pain, so I...

Replied Oct 31

Head 'pain'...not head ache

Another reason for that kind if pain on one side or the other or both, could be that the occipital nerve is irritated in some way. My pain was just like you describe, so we had to do a few surgerie...

Replied Oct 31

 

Tahoe's Page

Latest Activity

I have tons of people with apnea, includig myself. It is too easy for doctors to say "Oh, you are overweight, so that is why you snore". Yes, being overweight CAN be the cause, but several people I know are not overweight, again, including myself....
November 8
We discuss abstinence of caffeine all the time. We have touched on Adenosine, but not much. Thanks for this post! My migraines occur like yours. When my emotions crash after a stressful situation, then the migriane comes in. But, also smells, like...
November 8
Well, I can tell you that most of our discussions about gabapentin have to do with calming Restless Legs Syndrome. many people take it for their RLS in my communities, but as far as taking it for sleep, if your RLS is quieter you will sleep better...
November 8
HI, Ron, Well, you definitely have an excellent record of your history! Good job! I was the primary caregiver for my father late in his years. he passed away last Feb, but he was bipolr also. Everything you are describing to me in your story, brin...
November 8
In my groups that I manage there is no such thing as "TMI"; too much information. we discuss hot flashes, and yes, men have them , too. I have several men in my groups exploring the question of hormones and testosterone levels, as well as men. We ...
November 8
So, in other words you really did not have dystonia, but your neuro thought you did at first? Please see my post about th occipital nerve below. There can be hundreds of reasons for head pain, so I would be doing some research, especially if you h...
October 31
Another reason for that kind if pain on one side or the other or both, could be that the occipital nerve is irritated in some way. My pain was just like you describe, so we had to do a few surgeries to get it uder control. Ask your doctor about th...
October 31
Your first question is what I wnat to get back to. I use all these approaches, depending on the person. I have been exchanging info and talking with a lot of people for 10 yrs or more. so, thise people know what I want, and how they should behave....
October 30
"speaking up" does not mean you are a whiner. that is what support groups are for. yes, your pain is your pain, but everyone is in that group because they have sinilar problmes to you, so the more you speak up, the more you help other people and y...
October 30
Hello! I can give you some god examples. The other day a person joined one of my groups, and promptly said that RLS is a form of Parkinson's. She also had some other misinformation. I get so many new members each week, that I have to make sure tha...
October 30
Tahoe left a comment for amanda
October 30
amanda left a comment for Tahoe
October 30
HI, folks! I was just introduced to this web site today, and joinjed this group. I have the trifecta of sleep disorders- Insomnia, Restless Legs Syndrome, and Sleep Apnea. actually there are 4, because I have PLMD, too. (periodic leg movement diso...
October 28
Tahoe joined Adrienne's group
From help with insomnia to dealing with kids who refuse to hit the sack, please discuss any news, research and resources related to sleep problems. Don't forget to touch on solutions!
October 28
Tahoe is now a member of WEGO Health
October 28

Profile Information

In the online health communities I participate in, I'm:
a Broadcaster (Getting the word out)
The online health resource I contribute to most frequently is:
http://health.groups.yahoo.com/group/rlssupport
This site is:
a community I manage/moderate
Another place where I contribute is:
http://health.groups.yahoo.com/group/RLS_Insomnia_Support_Group
Which is:
a community I manage/moderate
I’m also on:
http://www.health.com
It's:
a community I contribute to
You can also find me at:
http://www.rls.org
This is:
a community I contribute to
More about me (my health interests and reasons for joining WEGO Health)
I also am very active on the RLS Foundation Facebook page. I am on disability for chronic pain issues and sleep disorders, so my unofficial full time job is moderating support groups/owning them, and I like to get the word out. I started a letter writing campaign to Congressman Henry Waxman about RLS awareness, after he was on an interview show, and made fun of RLS. He does not make fun any more. He sent an aplogy letter to the RLS Foundation, and to us, after our campaign. He is very aware now! So, that is what I like to do. I am also a researcher and Mama Bear. LOL

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At 4:39pm on October 30, 2009, amanda said…
Hi Tahoe! Welcome to WEGO Health :) We're happy to have you. I see you've already jumped in and joined the Sleep Problems group and added a comment - it's great to see you finding your away around the site. If you have any questions - please let me know!

I look forward to learning from you and sharing great discussions and resources!
-Amanda
 
 
 

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