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I have suffered with a tremor in my hands at least, not to mention my head since I was a child & messed around by the NHS in England for over 10 years, until I was finally diagnosed properly almost 2 years ago with Cervical & Myoclonus dystonias &...
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- Location
- PR5 4HU
- More about me (my health interests and reasons for joining WEGO Health)
- I suffer from Cervical & Myoclnus Dystonia. I also have Essential Tremor. I was diagnosed last year with the first 2 after years of being told it was all in my head. I hate the fact that so many other sufferers are going through similar experiences I did & so want to spread awareness among society as a whole. I enjoy reading when I can concentrate, watching films, seeing bands & listening to all kinds of music. I use alternative & complimentary therapies to help me deal with my condition & would like to help others to deal with theirs too. I am secretary for my local Dystonia Support Group & though Dystonia is hard to cope with at times I am very thankful that by having it, I have been able to meet so many nice people.
Comment Wall (7 comments)
- At 9:25am on February 17, 2009,
imambaba said…
- hello ..
thanks lot for your reply..i am very happy to have your valuable support..i need help regarding medical writing,,i am in entry level please help me how i start the career.. now i am doing one medical writing course...
- At 2:21pm on December 26, 2008,
FelicityNexus said…
- Hi Tracey,
trying to stay positive is the best thing to do, but i find it some times hard to keep doing,it is difficult at times when you get isolated,but then all of the sudden I get a glimmer of hope agin and keep thinking do not give up.Maybe to become a acrobat is a good idea. I find keeping humor is a good thing also.Take care and keep smiling.
your wego friend,
Felicity Nexus
- At 10:20am on December 22, 2008,
Ellen S said… - Hi Tracey - Welcome to WEGO Health! I'm glad to see you commented on the Dystonia group already. You sound like a very active person in the Dystonia community. I'm sure you have so much to share with us! I'm so excited you're here. I have Dystonia also, and helped Beka to start the group here. She has made it such a success!! I'm a Migraine blogger here as well. The spasms of Dystonia and Migraine are intimately tied with me, and each makes the other much worse. It's a tenacious balance, keeping each under control. There are so many Migraineurs who don't realize they are suffering from Dystonia as well. Different forms. Some, but not all suffer as a result of the medicines they're taking for Migraine attacks. So many are told it's in their mind, or it will go away and not to worry about it. I am Generalized and was told I was a drug-seeker. I hope to help dispel these kinds of myths. The sooner, the better!
I look forward to getting to know you. If you can, stop by and say "hello"!
Ellen
visit my WEGO Health Migraine blog
- At 12:24pm on November 14, 2008,
luraca79 said… - Hi Tracey.
First of all sorry for my bad english, but i have it a little rusty :)
Pleased to meet you. I´m a physiotherapist whose friend is Fernando, a Spanish dystonic patient. He has a web: distoweb. Perhaps you don´t know that both of us have been working to implement in his web a physiotherapy section; in this section we comment in a very practical way the most common dystonic symptoms and we do some references about Parkinson and essential tremor. I think all of this could help a lot of people in order to treat themselves and to get a better life quality.
To everybody:
Please enter distoweb and get profit on it :)
A hold to everyone.
Luis.
- At 11:09am on September 27, 2008,
Robin Wood said… - Hi Tracey,
I'm so happy to see you here, welcome my new friend :) I was reading about what you wrote in the tips and tricks, I'm gonna talk to my health food store people about that, thanks. I also didn't know you too had trigeminal neuralgia. More and more I am hearing of people who have both so I started a new thread on that subject.
If You need any help or have any questions please feel free to let me know :)
Robin
- At 2:32pm on September 26, 2008,
Lene said… - Hi Tracey,
Wonderful to hear all the things you have done to help your dystonia. Have you found anything to help your tremor?. My tremor drives me crazy!!!
Welcome to this great site and I will be popping in to visit your my space also.. Take care and please keep in touch to just chat with me I enjoy mail. eileendonahue@comcast.net Lene
- At 8:30am on September 26, 2008,
Tracey said…
- Hi Paula,
Thanks I will. You take care too.
Tracey
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