Vanessa_Rhinesmith's Page

"whether or not it is clear to you, no doubt the universe is unfolding as it should…[max ehrmann]" I suspect that this should be atributed to Lao Tsu (250 BC). With respect for your wise choise of words, John..

Thanks for the welcome Amy and Vanessa,

I found this group suggested by Amy, though the chronic pain group.

I have been severely ill since Aug 2008. Have dystonic and mycolonic movements. Wasted a year with Neuros. Until finally seeing other specialists at my request to my GP.
Have been given a dx of Colitis, Severe Vit D Deficiency and most
recently am waiting on a Fibro dx.

I see the Rheumatologist Dec 15. And he has said he's very likely going to give a dx of Fibro. I had looked into many conditions since Aug 08. I never considered Fibro and it was never suggested to me.
But as I am learning more about it, I am coming to recognize myself in the symptoms.

I have become very disabled. I currently use a wheel chair about 95% of the time to leave the house. For very short distances...eg from car to door....I use crutches.
I was having non stop pain all over my body. I couldn't get into my own bed. Or lift myself off of the couch.
But now I'm on long acting , long term pain meds and am feeling a lot better.

I was going to private physio while I was on a hospital waiting list. They said they were not equipped to deal with someone in my condition.
Now I go to the hospital 2 x a week until they can build up my strength. Then it will increase to 3 x.
The physio brings on the movement episodes. So my therapist is having me reassessed at the hospital.

I plan to work hard at gaining back some of my life. I've been told I'll always have to do physio to some degree. But as long as it gives me some hope, than I will do it.

Thanks again for the welcome. : )
Elaine

well hello and thank you it is a lot of thing to talk about on this web page

Thanks Vanessa for the warm welcome

Hi Vanessa -

You're very welcome! It was as much a pleasure for me as I hope it was for the others.

I've been out of touch for several days and only just now got your note. I know a little bit about COCs and ovarian cysts, but want to do a little more homework before I comment. So I want to make sure you didn't feel ignored! And I'll dig up as much as I can.

Warmly,
dindin

Hi, sure I'd love to host an event in my area. Keep me posted, ok?

HI THERE.i HAVE A DAUGHTER WHO IS 3 AND SHE IS SUSPECTED TO HAVE AUTISM.SHE WILL ONLY BE MILD IF SHE IS DIAGNOSED WHICH SHOULD BE EARLY SEPTEMBER.iVE DONE AS MUCH RESEARCH AS I CAN FIND BUT JUST WONDERING IF YOU KNOW OF ANY VIDEO WEBSITES I COULD LOOK AT TO COMPARE OTHER CHILDREN OF THIS AGE WITH AUTISM?

HI
Thanks for the welcome Vanessa. I'm not sure how this group works...so I don't know where I should begin.
I've been ill for a year now. Briefly..... Began with movements, which are so severe they resemble a seizure. Vit D deficiency. Parathyroid is high. But calcium is normal. Today the Dr says red blood count is high. And I have a Vit B 12 deficiency.
Elaine

thanks for the welcome vanessa. I didn't even know this existed. was introduced by a dystonia support group & have already learned something new. look forward to meeting new people.