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amanda
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Breast cancer kills far fewer women than heart disease and stroke do, but the pink movement has become the juggernaut of women's health advocacy. I think early detection is great, particularly since that's what found my Stage IIa breast cancer, b...
yesterday
amanda added a blog post
Back in October, I wondered do cancer screenings help us or hurt us? This question came in response to the American Cancer Society's recent reports that "early detection of breast and prostate cancers has gone up, but there has been no decline in ...
yesterday
amanda added a discussion to the group Breast Cancer
I just read this blog post by Barbara Ehrenreich called "Not So Pretty in Pink: The Uproar Over New Breast Cancer Screening Guidelines" (which you can read here and here) and wondered what others thought about it. Barbara's writing, as always, is ...
yesterday
New mammography guidelines may be a blessing in disguise for personalized medicine. See http://cli.gs/vj18PT
on Wednesday
amanda added 2 blog posts
on Wednesday
A blog post by amanda was featured
With new diagnoses come new discussions to have with people in your life. Whether you're explaining your own diagnosis, symptoms, and treatment or explaining a friend or relative's new diagnosis, there are certain ways to go about it in an inclusi...
on Wednesday
Wow - Amanda, what a great post! I was 20 years old when I was first diagnosed with cancer. Even though I was a bit older, I can relate to what Darrayah is feeling. It's tough to be a child or young adult dealing with an illness. It's isolating, d...
on Wednesday
What an articulate, smart and beautiful little girl!! It's so hard for kids to be ill or have a chronic condition like Darrayah's sickle cell. I think it's wonderful that she made this video. It's important for kids to tell other children about th...
on Tuesday

Profile Information

In the online health communities I participate in, I'm:
a Librarian (Passionate researcher)
The online health resource I contribute to most frequently is:
http://www.twitter.com/wegoamanda
This site is:
my twitter
More about me (my health interests and reasons for joining WEGO Health)
Hi I'm Amanda. I just graduated college this spring with a BFA in Creative Writing (my thesis was in poetry). Now that I'm not focusing my energy on writing poems (though, of course, poetry is still always on my mind) I'm doing a lot of writing here at WEGO Health. I do lots of health research and even more health-related thinking. All of the discussions here really fascinate me. Every day I learn something new.

When I'm not writing, I'm probably watching tv, downloading new music, reading blogs, or sleeping. I like pretending I can cook by mixing every spice in my cabinet in a frying pan and then putting food in it.

Comment Wall (30 comments)

You need to be a member of WEGO Health to add comments!

Join this Ning Network

At 12:22pm on November 11, 2009, Enzo Darrigo said…
thank You so much I've joined the group!
At 5:27pm on November 6, 2009, Amy K said…
Hi Amanda!
Thank you for joining the Twitter for Health Activism group! I look forward to making lost of great connections there and to learning from one another as well.
Hope you are having a great week and a great weekend ahead!
Amy
At 10:11pm on November 4, 2009, mona said…
hi,amanda.thank you.I like that the wego health is discussing problems people are suffering from.can you do me a favour i am looking for discussion related to physical disabilities or mental health.can you send me the links related to this?thank you for the welcome.
At 5:07pm on October 30, 2009, Tahoe said…
Thank you, Amanda! I am finding my way around. i did participate in the Restless Legs Syndrome insight session yesterday, too. I plan on starting my blog sosn. Are there enough hours in the day?
I am also a are give for my 82 yr old mom, and took care of my father until he died. he had Alzheimer's, Parkinson's, and was bipolar! Now that was a job. He is at peace now. Resources for care givers are so important. My main interest is sleep disorders, particularly RLS, and I moderate several online groups for it. I will be sending people this way shortly. I love the way this web site is set up! Thank you for the welcome, and I am sure we will be talking more very soon.
At 10:23pm on October 18, 2009, asburyparkangel said…
Hi Amanda!
feel free to visit my music site

www.indieheaven.com/artists/anitaferrer-asburyparkangel
and my art/portfolio sites on

www.impactfolios.com/anitaferrer
www.impactfolios.com/asburyparkangel

Be blessed & I hope to hear from you:)
At 2:18pm on September 30, 2009, TENA/DIAMOND said…
HI AMANADA. THANK YOU FOR BEING A FRIEND. IT MEANS A LOT. THIS IS ALL NEW TO ME ... HERE! YES I LOVE RESEARCHING AND I DO HAVE A SPECIAL INTEREST WITH ALZ. MY AUNT HAD IT PRIOR TO HER PASSING. PLUS I KNOW PPL IN GENERAL THAT HAVE IT OR THEY CARING FOR THEIR LOVE ONE.
IT IS A DIFFICULT DISEASE , TO SAY THE LEAST.
THANK YOU FOR ALL.

I DO BELIEVE AS YOU HAVE SAID , THAT WE HAVE MUCH IN COMMON HERE.

YOURS DEARLY;

TENA/DIAMOND
At 7:13pm on September 26, 2009, joehappy46 said…
Um..I know I don't have a picture up yet...but..how do I say this with tact...um...little fidgety here...are you single? :) There I said it, or asked it that is.
At 2:05pm on September 22, 2009, Disa said…
Hello Amanda,
How kind of you to welcome me to the new groups. I've been quite ill this summer and spent most of it in and out of hospitals. As a result, I've been absent from the site that offers me so much. I've missed the reading, learning and conversations.

Hopefully, I can get back in the groove from now on. I need the contacts and encouragement just as much as I love giving to others the same. May God Bless you and give you many more GOOD days than painful ones.

In Him,
Disa
At 10:42pm on September 21, 2009, redheadsupermodel said…
Thanks for the welcome Amanda! I love WEGO. It's a great site. Great community!
At 4:42pm on September 21, 2009, carissao said…
Hi Amanda,

Thanks so much for your note. While I joined WEGO Health a while back, I haven't really dug in, particularly with groups, until now. I appreciate the welcome and look forward to exchanging thoughts with you. Thanks for the follow on Twitter; I followed you back.

It was actually WEGO Health--or at least your newest team member, Gradon Tripp--that inspired that tweet about my Dad. I saw that you guys got all decked out in purple for World Alzheimer's Day and it quickly got me thinking. I had a few sad moments, yes, but I prefer to focus on the happy times and to be thankful that we can still enjoy some of those with my Dad, who is doing relatively well. I also decided to quickly mobilize. It's a really busy time for me and I didn't think I'd be able to swing the Memory Walk, but I'm realizing that it was the fundraising in a tough economy that was holding me back. Instead, I'm going to raise what I can and do my part, so I just quickly pulled together this page: http://memorywalk09.kintera.org/manh/carissao

I'll dive into the Alz discussions and look forward to being a more active member of the community. Thanks again for reaching out.

Best regards,
Carissa

Amanda's Blog

amanda

Defining a Women's Health Movement: Is there Activism Beyond Breast Cancer?

Back in October, I wondered do cancer screenings help us or hurt us? This question came in response to the American Cancer Society's recent reports that "early detection of breast and prostate cancers has gone up, but there has been no decline in late-stage breast and prostate cancer." Since the ACS report came out warning against early detection and frequent mammograms, it seems everyone has bee… Continue

Posted on December 4, 2009 at 1:30pm — 1 Comment

amanda

Initiative that Could Change the Future of Care for Sickle Cell Patients

Often we wonder, "how can doctors and hospitals work together to provide patients faster and better care?" While we may have our own ideas as Health Activists, getting the ball rolling toward actual results is often difficult. Because of this fact, I wanted to share the recent story of what the Medical College of Georgia is doing with a grant they've received. Their initiative aims to provide more succinct care forContinue

Posted on December 2, 2009 at 12:00pm —

amanda

Kids Talking to Kids about Health, Diagnoses, and Symptoms

With new diagnoses come new discussions to have with people in your life. Whether you're explaining your own diagnosis, symptoms, and treatment or explaining a friend or relative's new diagnosis, there are certain ways to go about it in an inclusive, informative way. In the past we've discussed ways to do this and shared the difficulty that comes with… Continue

Posted on December 1, 2009 at 12:30pm — 2 Comments

amanda

Shaping the face of your cause: Who holds the power?

As Health Activists, we sift through an array of health information from medical reports and news articles to message boards and tweets. And, personally, as I research more about a disease or health condition, sometimes it takes a personal account or opinion-piece to really communicate the weight of the condition to me. This concept of coming to understanding via someone's personal story made me think about the way we define specific health conditions and disease and what goes into creating aContinue

Posted on November 24, 2009 at 12:57pm — 2 Comments

amanda

Talking to a Child or Teen About Alzheimer's

Explaining things to children isn't always easy. Sometimes you have to sacrifice telling the whole story as you understand it, in favor of reaching an understanding with them. But, as you've probably experienced personally, children are extremely perceptive and honest about their feelings. When talking to children in your life about health, have you struggled? What techniques did you use that worked? How much detail did you share? What did you purposely leave out or "soften" when talking tContinue

Posted on November 23, 2009 at 12:42pm —

 
 
 

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