bentnotbroke's Discussions
Just for the fun of it!!
Started Mar 3
bentnotbroke's Page
Latest Activity
Nope, not me. Just get them dirty in the garden!
sorry I missed it!! I heard about it too late. Any way I can put a link on my FB page?? I will go to the ABC news site & check it out. Thanks, Ellen!
I have had surprisingly good rsults with gabapentin (in Canada) with few side effects. Fatigue was the worst effect when i started, but my body acclimatized. I have been using it for about 6 years. I have had CD fro 20 years. This drug did not do ...
count your blessings....
I have been involved with physio for about 4 years. It has helped much with maintaining flexion, relieving pain, balance problems. I do some weight training, with much stretching, massage, balance work. It does take a lot of time & at my age (55) ...
try soaking in epsom salts, or scented bath salts. Much better for you skin & the salts actually soak toxins away.
Profile Information
- In the online health communities I participate in, I'm:
- not really sure where I fit yet
- More about me (my health interests and reasons for joining WEGO Health)
- I have segmental dystonia, dxed in 1989, when I was 36. Right hand tremor, right hand writers cramp, CT, facial spasms. Scoliosis is in the mix, I don't walk without my cane, bad balance.
I am involved in intensive physio & osteopathy work. This will, hopefully, improve my balance, straighten my back a bit. My dystonia is genetic..my younger sister was dxed at 5 years, in the 60s.
My clinicians are impressed with flexibility & muscle tone & this makes them optimistic. I am willing to try anything & do. I had Deenervation surgery in 1993, & do not recommend it. I no longer get Botox shots. I use 1200 mgs of gabapentin & 1 1/2 mgs of clonazepan. I use Ibuprofen for pain relief. I am very lucky. I know my symptoms could be much worse & I am proud of the bit of independance I have been able to build back up to. I like to be as active a possible & I love to power nap the afternoon away when necessary.
Comment Wall (9 comments)
- At 8:19am on April 23, 2009,
Vanessa_Rhinesmith said…
- Hi there,
You may notice that content has been deleted from the Dystonia area.
WEGO Health is a place for open, constructive interaction – we welcome all points of view. We strive to maintain a positive community experience for all of our members, and we reserve the right to review and remove any content that we believe is disruptive and/or distracts from our mission of empowering Health Activists to help others.
Please see the full Community Guidelines for more information or contact community@wegohealth.com or me with any questions.
Enjoy your day!
Many thanks,
Vanessa
--
Community Manager
- At 7:36pm on February 11, 2009,
TWISTEDJAM said… - Your welcome !
The tree wouldn't be complete without a red cardinal on it !
It's a honour to have you on the tree !
I'm glad you enjoyed the puppet image as well !
Take care
P.S. The tree might be "bent & twisted" ... but not broke !
- At 12:41pm on January 5, 2009,
Ellen S said… - Oh, just the most beautiful cardinal photo!! We have a couple pair living here. So beautiful in winter, but I am never quick enough with my camera to capture one!!
- At 12:45pm on December 19, 2008,
TWISTEDJAM said…
- Hi there Bentnotbroke!
I hope you are doing well!
We are having a major snow storm here in Toronto !
How's the weather in Dunville ?
My storm is soon on the way ... have to wait for January 16TH for my next series of injections. Greatful to God though ... things could be much worse !
I would like to wish you a "Very Jolly Christmas" as well as Comfort and blessings for you in the new year !
Take good care!
Peace
Grace
- At 8:56pm on October 15, 2008,
TWISTEDJAM said…
- Hello Neighbour & Friend !
I'm in Toronto!
By the way I like your name...very original!
Thanks for adding me as a friend!
You can knock any time!
Take care!
- At 7:42pm on September 9, 2008,
Thorns said… - Hope you enjoy this site as much as I do. Thorns
- At 2:55pm on July 10, 2008,
bentnotbroke said…
- No worries, Elvie. I made it up quickly, I'[m not used to "user name" yet, or forums, ffor that matter. I usually am a Facebook gal. Thanks for the welcome. I did post the site on my Facebook page.
- At 2:03pm on July 10, 2008,
Elvie said… - Sorry I entered your name wrong but don't know yet how to correct mistakes after I have already hit the ADD COMMENT.
Elvie
- At 1:59pm on July 10, 2008,
Elvie said…
- Love your name bentnotbroken.
Welcome to the forum
Elvie
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