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bkaren46
  • 48, Female
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  • United States
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Thank You Beka for the Kudos.
July 27
Yes I did Beka. And yes others have called, but not sure how many.
July 27
Ernie and bkaren46 are now friends
July 23
Well the voice mail worked and I got an immediate response from Debby Garner. And this is what I talked about. I mentioned that Williams was quoted in a statement on there company’s website as saying, “As a working woman and actress, I know how i...
July 23
I spoke to someone at allergan today and I was told that we should bombard Debby Garner head of marketing and here is the phone# 800-347-4500 Everybody should call and leave her a voice mail. Let's drive her crazy? What are other's thoughts? I ag...
July 23
Well I just got off the phone with Lisa she is Debbie Garner's Assistant. I said I knew they were getting ready to start a marketing campaign and asked why couldn't market Dystonia and than botox can be talked about as one of the treatment options...
July 21
I just called and spoke with a representative from http://www.allergan.com/ and I mentioned that I hurd about a new spokesperson for Allergan and wondered why they don't talk about Dystonia since there is about 300,000 in north america alone with ...
July 21
I am so sorry to hear this. My thoughts and prayers are with you and your family. Karen
July 11

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At 4:52pm on February 21, 2009, Trudy said…
Hi Karen,
You've been on my mind and although I didn't have a comment to add to a post necessarily, I wanted to say hello.

If you would like, you are free to email me anytime at tmk1226@gmail.com

Take care,
Trudy
At 1:37pm on October 1, 2008, Lene said…
Karen- Welcome to Wego Health and to new dystonia friends. I enjoy reading all that goes on here but I myself cannot always participate due to my fatigue etc. I love to read it all though...Best of Luck and welcome once again Lene
At 1:40am on September 17, 2008, beka said…
Karen- please email me directly via infoc4d@aol.com and I will review your med list.
Have the seizures been documented by an EEG ?
Why on so many meds ? You must feel fatigued right out of your mind with all these meds.
Email me directly.
beka

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More about me (my health interests and reasons for joining WEGO Health)
I am 47 yrs old, I have Mitochondrial Disease which is primarey to Spasmodic Torticollis/CD, Myoclonic Movements and seizures.
 
 
 

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