bkaren46's Page
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I would say to do educate your self, Knowledge is so important.
Find a specialists that deals with Dystonia.
This is such a great topic. I think when we discover other people or sites, that are talking about Dystonia. I think it is our responsibility to make sure they are well educated, and have the information they need to spread this awareness. This is...
I would have to say that for me, attitude plays a big part in how Dystonia reacts. And what I mean by this, is when I am not in a good place emotionally, I no I feel the pain so much more, because during this time the pain is all I am focused on.....
I am not sure if I would call this shock like symptoms or what it is. The bone at the bottom of my scull, I get a very sharp pain that lasts about, maybe 10 seconds or so. And than it just goes away. And this only happens when Cervical Dystonia is...
Good Morning Everyone, I have a facebook account. And recently I have re-connected with a lot of Family members, old Friends etc. On my facebook wall I posted Robin's video about Dystonia. THANK YOU ROBIN, "for sharing and creating this video," An...
Dear Dystonia, I have let you control me for way to long, And now it is time to take my life back. I am going to live and enjoy each and every day. I will cherish every moment. And I am going to fight with everything I have.
Robert, I think it took so much more energy to be negative, And you are so right living in the moment is so important. And enjoying every second life has to offer. I look forward to life today and will cherish every moment.
Beka, I want to thank so much for all your time and effort you put into the Dystonia community. I am so open to change.
Life is taking on a new meaning, and I see things so different today. And today I do have peace in my life. And I am so gratefu...
Profile Information
- More about me (my health interests and reasons for joining WEGO Health)
- I am 47 yrs old, I have Mitochondrial Disease which is primarey to Spasmodic Torticollis/CD, Myoclonic Movements and seizures.
Comment Wall (3 comments)
- At 4:52pm on February 21, 2009,
Trudy said… - Hi Karen,
You've been on my mind and although I didn't have a comment to add to a post necessarily, I wanted to say hello.
If you would like, you are free to email me anytime at tmk1226@gmail.com
Take care,
Trudy
- At 1:37pm on October 1, 2008,
Lene said… - Karen- Welcome to Wego Health and to new dystonia friends. I enjoy reading all that goes on here but I myself cannot always participate due to my fatigue etc. I love to read it all though...Best of Luck and welcome once again Lene
- At 1:40am on September 17, 2008,
beka said… - Karen- please email me directly via infoc4d@aol.com and I will review your med list.
Have the seizures been documented by an EEG ?
Why on so many meds ? You must feel fatigued right out of your mind with all these meds.
Email me directly.
beka
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