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joanne
  • staffordshire
  • United Kingdom
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Lorraine Blum and joanne are now friends
on Monday
karen left a comment for joanne
August 11
that interesting, have abi, BUT Not tramatic. mine caused from medications as far as I know, antidepressants and tegrotol. celexa really did a bad job on me, they both did.
July 27
Hi Joanne, In answer to your question - Can anyone else find a connection with head trauma? Can I bring your attention to a film called “Twisted” by Laurel Chiten. It is well worth seeing. Have seen it on UK TV – albeit on remote and lo-profile...
July 23
Hi, thanks for your comment. Do you know anyone that has been affected with Dystonia because of a head trauma?
July 11
July 11
July 11
Yes, one of the biggest reasons for people to get Cervical Dystonia is truama, and I hope you get a good movement disorder neurologist's. My family has no history of dystonia but I have two brother's plus myself who have dystonia and it effects al...
July 11
joanne left a comment for noelv
July 11
noelv left a comment for joanne
July 10
joanne left a comment for John
July 10
July 10
joanne left a comment for GGMel
July 10
joanne left a comment for karen
July 10
John left a comment for joanne
July 10
joanne added a discussion
I was diognosed with CD just under two years ago. As with everyone i wanted answers, reasons, why me? None of which where forth coming!!! I have searched my family history and not one of my relatives has had so much a twich, yet i have constant mu...
July 10

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At 11:48am on August 11, 2009, karen said…
hi joanne..sorry it has taken me so long to reply to your comment..i sometimes
forget to check mypage..it is amazing that the internet has opened up a whole new world for us dystonians..bringing to our attention that we're not alone with our battle with dystonia..that there others just like us out there!!
i know that just knowing that has meant alot to me..as has being able to actually connect with others who understand what it's like to go thru what we go thru..there's nothing better than having a friend..or friends to help you thru the rough times..it makes this journey we are all on so much easier!!

i look forward to getting to know you better..karen ;o)
At 10:33am on July 11, 2009, scotsirishrn said…
Hi Joanne,
The first few years of having dystonia, I felt were the most difficult. It has a tendency to worsen until you hit a plateau at about 5 years. Did it take a long time for you to be diagnosed or was it right away. I am unsure regarding DBS early in the game. I know Beka Serdans if very knowledgable regarding DBS surgery and is an excellent resource. I would ask her opinion. By the way, welcome to this forum. If you have facebook I am on it. I am under Debbie Graham. Please feel free to add me as a friend. :)
At 3:04pm on July 10, 2009, noelv said…
Hi joanne. My neuro at Columbia Presbyterian Hospital where they pioneered a lot of the Botox treatments recommend this neuro in the UK; Khalash Bhatia is at Queens Square in London
At 10:29am on July 10, 2009, John said…
Hi Joanne!

How are you doing today? It's always great to see new faces here on WEGO Health! Have you checked out any of our groups yet? It's a great way to participate in on the great discussions already going on.

Also, you should check out the forum. I posted '11 Health Myths' and would love to know what you think!

Lastly, you should take the 'What Type of Health Activist Are You?' Quiz. It's a great way to see where you fit into the community.

Let me know if you have any questions, and once again--WELCOME!

Profile Information

In the online health communities I participate in, I'm:
not really sure where I fit yet
More about me (my health interests and reasons for joining WEGO Health)
hoping to conect with other with cd.
 
 
 

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