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kamelia
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hello stan your comment is very helpful for me. thank you so much for your response. kamelia
August 27
After my first heart attack, back when the doctors had no clue about getting my blood pressure under control (it ran in the 216/120 range all the time), they still wanted me to take aspirin regularly. I tell this with some reservation as I have li...
August 24
hello beka thank you so much for all the information about DBS.i have two questions. is the patient's age a restrictive factor for DBS surgery? how many patients with dystonia had a sever complication after surgery? thank you so much beka. kamelia
June 26
Some news about the rechargeable DBS system- I can't help not noticing how Medtronic and St. Jude are outdoing each other in marketing releases touting "first ... new ... improved ... revolutionary", while the clinical community seems to be taking...
June 26
June 26
Hi Kamelia- How are you ? The key to DBS is to be as informed about it as you. I had DBS done in 2004 for dystonia. And have somewhat mixed mixed reviews about it considering I work within the healthcare field as a RN-NP. Depending on the type of ...
June 26
June 26
June 25
June 24
June 24
June 24
hello jeannie thank you so much for your response.i am happy that you are feeling better now. you wrote that you have done the DBS surgery two times.may i ask you why you did this surgery two times.was there any problem in the first surgery? what ...
June 24
Hi Kamelia, I had the DBS surgery done in 2003 and again in 2008. I can say that I am about 50 to 60% better. The hardest part is going through the programming. I still take klonopin, tylenol w/cod #4 and ibuprofen, but only in very small doses. ...
June 23
kamelia added a discussion to the group Heart Health
hello i have two questions about heart attack and aspirin. 1)is it okay to take an aspirin for a person with hypertension during the heart attack? 2)may taking an aspirin cause a problem for a hypertensive person during the heart attack? thanks ka...
June 22
kamelia joined Adrienne's group
Whether you're fighting heart disease or just want to keep your heart healthy, come on in for support and advice you can take to heart.
June 22
hello thorns thank you so much for your response.i am very happy that your brother is feeling better now. this experience is very useful for my cousin. thank you so much for your guidance on how to find more information about DBS. thanks kamelia
June 21

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At 2:42pm on June 26, 2009, Jeannie said…
Hi Kamelia,
Here is another web site that you may want to check out:

http://www.dystonia-bb.org/forums/asd/index.html

Jeannie
At 5:35pm on June 24, 2009, Jeannie said…
Hi Kamelia,
Try to e-mail me at bunnyblue72000@yahoo.com
We will have to see if this works. I don't know how else to do it. Send me a message.
Jeannie
At 2:52pm on June 24, 2009, Jeannie said…
Kamelia,
If you would like to send me your e-mail address, maybe I can explain in detail about Why I had two surgeries.

Jeannie
At 11:16am on June 17, 2009, Vanessa_Rhinesmith said…
Welcome to WEGO Health, kamelia!

I am so sorry for your cousin's struggles with Dystonia; it can be an incredibly tough journey. I would encourage you to visit our Dystonia community. They are an amazing group that has much to offer - both support and information. We also have many other groups to fit any interest. I would also encourage you to check them out!

I also wanted to encourage you to take a few minutes to participate in our What Type of Health Activist Are You quiz. It's easy to do, and since you're already a WEGO Health member, it helps fill out your profile!

Please let me know if you have any questions about how to get started - or if you can't quite find what you're looking for.

Be well,
Vanessa
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hello
i am suzan.my cousin is suffering from dystonia.she is 57.her doctor want's to do DBS operation for her.she is confused and scared.i want to learn about this procedure from dear people with dystonia who have done this procedure.
thank you so much
suzan
 
 
 

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