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What I experienced was very sutle, it was like the muscle were contracting slowly, it's like when you try to hold your stomach in but at times you don't even now it's happening until it let's go and other times it's like you've been retching like ...
What sort of symptoms do you experience when you have spasms in your abdominal area ???
How was this determined ?
Tests ?
Out of interest,
beka
Elaine I totally agree with you about not having faith in Drs. I've seen them make huge mistakes with my mother and myself more than once they have nearlly killed my mother by not listening to the patient and family. Getting my Dx of dystonia was ...
Elaine that Dr is stuck in a rut. I can't imagine any Dr except amovement disorder specialist Dxing dystonia of any kind at a rate of 3 per day. Sounds like he can't admit if he doesn't know something. Is his head extremely large?lol I'd say run a...
birthdays don't equal physical age. Seeing an optician to look for the copper deposits is not a bad idea. Sometimes with Wilsons the copper levels can vary. Did they check your liver functions?
You hit the nail on the head!!
that mixture of drugs could definitly have given him dystonia. too many to fast could have killed him I'd call a lawyer. There are several sites that cover drug induced dystonia try google. I know I saw several in just the last few days of researc...
I saw 4 or 5 neuro that didn't know what this was. Fortunately my GP's PA went to Wayne State Med school with a Jewish neuro in a near by city. I AM not suggesting other neuro wouldn;t have caught it but because of the genetics involved I felt he ...
They have discovered 15 or more genes that may cause dystonia. More research in needed. With 3 children in same generation I'd be shocked if it wasn"t genetic in some way. What are the odds of it not being genetic. I'd have to guess billions :1. D...
flaxseed oil is actually better for you than fish oil because it also has omega 6 and 9. Fish oil is more highly advertised. Ran across this info at Mayo website and in old edition of Prevention mag.
YES, I too was told it was in "my head", went to therapy for months therapist didn't think it was"in my my head" at least not that way. Found that male Drs are more apt to tell a female it's in her head. That's my experience. If they don't know wh...
I had botox from 95 thru 07 every 3 months. Gave it up because area affected became to wide spread. If they had treated all areas I wouldn't be able to sit up or walk. Absolutly not ready to give them up.
I was in my mid 30's am now 52. comment to Lizabeth not older than dirt yet but sure feel that way.
I also have truncal except it affects my lumbar and paraspinal muscles also left side below ribs and some abdominals. How fortunate you are to not have pain. It's amazing you were able to get a Dx so fast.Took 3 years in early 90's.
my profile:Lisa age52 Dystonia type secondary segmental treatments: dysport, oxycontin, rotate every 3 months with valium, robaxin, soma, for break through pain actiq Years Dx 12 from Mayo Local neuro 15
My brother and myself use to get spasms in our abdominal area also, but Baclofen has taken care of this, it was like someone was massaging our stomach it was very creepy. Haven't had it for year's since taking this medication the same with my brot...
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